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Planning For Lifelong Care: Guiding Questions For Transgender & Non-Binary People Webinar

The SAGE National Resource Center is joined by the Transgender Law Center for the webinar Planning for Lifelong Care Webinar – Guiding Questions for Transgender & Non-binary People to Plan for Dementia and Other Serious Illnesses.

August 2024

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Planning for Lifelong Care Webinar Q&A

Written responses to question asked during the webinar Planning for Lifelong Care for Transgender and Nonbinary People.

December 2023 | Ames Simmons Duke Law

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Remembering LGBTQ+ History and the Stonewall Generation

A look back on the experiences and stories of the LGBTQ+ Stonewall generation with author and researcher, Dr. Jane Fleishman.

October 2023 | Dr. Jane Fleishman

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Planning for Lifelong Care: Guiding Questions for Transgender & Non-Binary People to Plan for Dementia and Other Serious Illness

This guide provides tips and resources on planning and care for transgender and non-binary people.

September 2023 | Simmons A. Madhav K. & Ortiz A. (2023). Planning for Lifelong Care: Guiding Questions for Transgender and Non-Binary People to Plan for Dementia and Other Serious Illness. Oakland CA: Transgender Law Center.

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Cuidados centrados en la persona y atención informada sobre el trauma para adultos mayores transgénero

La presente guía tiene como objeto explicar por qué y de qué manera brindar
Atención Informada sobre el Trauma a los adultos mayores transgénero en términos prácticos

January 2023 | FORGE and SAGE National Resource Center on LGBTQ+ Aging

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Person-centered, Trauma-informed Care of Transgender Older Adults

This guide aims to explain the why and how of providing person-centered and trauma-informed care to transgender older adults in practical language. The concepts shared in this
guide are useful for anyone working in health and aging services where a focus on
individualized support is optimal for overall health and well-being.

January 2023 | FORGE and SAGE National Resource Center on LGBTQ+ Aging

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Medicare y los Adultos Mayores Transgénero

Los adultos mayores transgénero poseen necesidades únicas de atención médica. A continuación le explicamos lo que Medicare está haciendo por ellos en la actualidad.

January 2023 | Justice in Aging State Health Insurance Assistance Program Senior Medicare Patrol and SAGE National Resource Center on LGBTQ+ Aging

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Medicare & Transgender Older Adults

Transgender older adults have unique health care needs. Here’s what Medicare is doing
to address them.

January 2023 | Justice in Aging State Health Insurance Assistance Program Senior Medicare Patrol and SAGE National Resource Center on LGBTQ+ Aging

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Cómo usar pronombres de género

Esta hoja informativa describe la importancia de los pronombres de género y cómo preguntar sobre los pronombres que usa una persona.

July 2022 | SAGE National Resource Center on LGBTQ+ Aging

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How to Use Gender Pronouns

This fact sheet describes the importance of gender pronouns and how to ask about the pronouns a person uses.

April 2022 | National Resource Center on LGBTQ+ Aging

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Cómo ser aliado de las personas mayores transgénero

El Centro Nacional de Recursos sobre el Envejecimiento LGBT y FORGE están encantados de compartir el nuevo conjunto de herramientas Cómo ser un aliado de los adultos mayores transgénero.

July 2021 | FORGE and National Resource Center on LGBT Aging

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How to Be an Ally to Transgender Older Adults

The National Resource Center on LGBT Aging and FORGE are thrilled to share the new toolkit How to Be an Ally to Transgender Older Adults.

July 2021 | FORGE and National Resource Center on LGBT Aging

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Tips for Working with LGBT Older Adults

This fact provides useful tips for working with and supporting LGBT older adults.

March 2021 | FORGE

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Inclusive Services for LGBT Older Adults: A Practical Guide to Creating Welcoming Agencies

Updated May 18, 2020 – This publication highlights provides new research, resources, practical tips and suggested actions to help create inclusive and welcoming services for LGBT older adults.

May 2020 | National Resource Center on LGBT Aging

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To Survive on This Shore: 5 Years Later

An interview with Jess T. Dugan and Vanessa Fabbre regarding their groundbreaking project To Survive on this Shore: Photographs and Interviews with Transgender and Gender Nonconforming Older Adults.

April 2020 | Jess T. Dugan and Vanessa Fabbre

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Prepare for COVID-19: Tips and Resources for LGBT Elders and those living with HIV

Because LGBT elders and older people living with HIV are at higher risk for experiencing the COVID-19 virus more acutely, it is important to take steps to make emergency plans that can help reduce your risk of contracting the virus.

March 2020 | SAGE's National Resource Center on LGBT Aging

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San Francisco First in Nation to Fund Services for Transgender Older Adults and Adults with Disabilities

Press release from San Francisco Department of Disability and Aging Services announcing funding to start services for Transgender Older Adults and Adults with Disabilities.

February 2020 | San Francisco Department of Disability and Aging Services

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Aging While Transgender – Unique Issues

This fact sheet explores unique issues related to being transgender and aging.

November 2018 | SAGE

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Hoja Informativa: Salud Del Seno Y El Envejecimiento En La Comunidad LGBT

Hoja Informativa: Salud Del Seno Y El Envejecimiento En La Comunidad LGBT

March 2017 | Por Elías Grossman MSW defensor de la comunidad Susan G. Komen Pudget Sound

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Identifying the Transgender Population in the Medicare Program

Research study on how to identify and describe the transgender population in the Medicare program using administrative data. This is an Open Access Article published in Transgender Health by Mary Ann Liebert, Inc.

December 2016 | Kimberly Proctor Samuel C. Haffer Erin Ewald Carla Hodge and Cara V. James

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2015 U.S. Transgender Survey – Resumen Ejecutivo

Con casi 28,000 participantes, La Encuesta Estadounidense Trans del 2015 (U.S. Transgender Survey o USTS) es la encuesta más grande jamás realizada de las vidas y experiencias de personas trans.

December 2016 | National Center for Transgender Equality: Sandy E. James Jody L. Herman Susan Rankin Mara Keisling Lisa Mottet and Ma'ayan Anafi

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2015 U.S. Transgender Survey

With almost 28,000 respondents, the U.S. Trans Survey (USTS) is the largest survey ever devoted to the lives and experiences of trans people.

December 2016 | National Center for Transgender Equality: Sandy E. James Jody L. Herman Susan Rankin Mara Keisling Lisa Mottet and Ma'ayan Anafi

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2015 U.S. Transgender Survey Executive Summary

Executive summary of the 2015 Transgender Survey.

December 2016 | National Center for Transgender Equality

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From This Day Forward – Q&A interview with Documentary Director, Sharon Shattuck and her parents Trisha and Marcia.

This Q&A explores the real life family story behind the creation of From This Day Forward – a moving portrayal of an American family coping with one of the most intimate of transformations.

October 2016 | Sharon Shattuck and her parents Trisha and Marcia Shattuck

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Expecting Rejection: Understanding the Minority Stress Experiences of Transgender and Gender-Nonconforming Individuals

Transgender and gender-nonconforming (TGNC) individuals often are the target of enacted or external (i.e.,distal) experiencesofstigma, discrimination, andviolence,whicharelinked toadversehealth,particularly psychological distress.

September 2016 | Brian A. Rood Sari L. Reisner Francisco I. Surace Jae A. Puckett Meredith R. Maroney and David W. Pantalone

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Medicare Changes for Transgender Older Adults

Until recently, Medicare has not had specific guidance about how to address the unique needs of transgender older adults. That is changing.

July 2016 | SAGE & Justice in Aging

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Creating Equal Access to Quality Health Care for Transgender Patients: Transgender-Affirming Hospital Policies

Creating Equal Access to Quality Health Care for Transgender Patients: Transgender-Affirming Hospital Policies (updated May 2016) provides model policies on the following topics.

May 2016 | Lambda Legal, Human Rights Campaign, Hogan Lovells, New York City Bar

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Equal Access for Transgender People Supporting Inclusive Housing and Shelters

This guide produced by the U.S. Department of Housing and Urban Development (HUD) provides guidance on the HUD Equal Access Rule and supporting the inclusion of Transgender people in housing and shelters.

March 2016 | U.S. Department of Housing and Urban Development

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PrEP – Transcending Barriers for Safer Pleasure a Publication for Transgender Women

The resource guide was written by Project Inform and Outshine NW for women who are transgender and for other trans/gender-variant people who were assigned male sex at birth.

February 2016 | Project Inform

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Know Your Rights A Legal Guide for Trans People and Their Advocates

A guide prepared by Lambda Legal for Trans or gender non-conforming people and their advocates.

December 2015 | Lambda Legal

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TransLine

TransLine is a national online transgender medical consultation service that offers health care providers up-to-date transgender clinical information and individualized case consultation across a broad range of clinical transgender issues.

February 2015 | TransLine

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To Survive on This Shore: Photographs and Interviews with Transgender and gender variant older adults

This Q& A is with the co-founders of To Survive on this Shore — a collaborative project that combines photographs of transgender and gender variant people over the age of fifty with interviews about their life experiences with respect to gender, identity, age, and sexuality and provides a nuanced view into the complexities of aging as a transgender person.

January 2015 | Jess T. Dugan and Vanessa Fabbre

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Issues of Aging in the M2F Trans Community

This article is an insightful first-person account of aging issues that trans women face today.

November 2014 | Cici Kyttten

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Know-How: The Trans Person’s Guide to Get or Change All of the Life Documents and Essential Paperwork You’ll Need to Make Your Way in the World

This publication is chock-full of specific steps and how-to’s to help transgender people in New York State manage the process of changing names, gender markers, and identity documents from driver’s licenses to passports.

October 2014 | Planned Parenthood's Out for Health; Ithaca College Center for LGBT Education Outreach and Services

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Out & Visible: The Experiences and Attitudes of LGBT Older Adults (Infographic)

This infographic highlights a few key findings from SAGE’s report “Out and Visible: The Experiences and Attitudes of LGBT Older Adults.”

October 2014 | SAGE

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Out & Visible: The Experiences and Attitudes of LGBT Older Adults (Exec. Summary)

The Executive Summary of “Out and Visible” details highlights from SAGE’s uniquely comprehensive, nationally representative quantitative study on aging among LGBT people. The study was conducted in March 2014 by Harris Poll.

October 2014 | SAGE

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Out & Visible: The Experiences and Attitudes of LGBT Older Adults, Ages 45-75

Out and Visible explores the aging realities of LGBT people, as well as their fears, beliefs, behaviors and aspirations in areas such as healthcare, finance and retirement, support systems, housing and sources of information.

October 2014 | SAGE

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Creating End-of-Life Documents for Trans Individuals: An Advocate’s Guide

This publication is a guide to creating end-of-life documents with specific language that protects the interests of transgender individuals in having their gender identity and expression respected.

October 2014 | National Resource Center on LGBT Aging and Whitman-Walker Health

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Best Practices for Asking Questions to Identify Transgender and Other Gender Minority Respondents on Population-Based Surveys

This report assesses current practices in sex and gender-related population research and offers strategies for establishing consistent, scientifically rigorous procedures for gathering information relevant to the needs and experiences of transgender people and other gender minorities.

September 2014 | Williams Institute

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Providing Services to Transgender Older Adults: Tips for SMP Staff and Volunteers

This tip sheet, developed by SAGE (Services & Advocacy for GLBT Elders) and FORGE Transgender Aging Network, is intended for SMP staff and volunteers to provide basic information on working with transgender older adults.

September 2014 | SAGE (Services & Advocacy for GLBT Elders) FORGE Transgender Aging Network

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Transgender Older Adults & Medicare Fraud Prevention

SAGE (Services & Advocacy for GLBT Elders) and FORGE Transgender Aging Network developed this handout to be given out to transgender older adults as part of the Senior Medicare Patrol volunteer program. It provides information about specific issues related to Medicare fraud protection and the transgender community.

September 2014 | SAGE (Services & Advocacy for GLBT Elders) FORGE Transgender Aging Network

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Medicare and Transgender-Related Care

On May 30, 2014, the Department of Health and Human Services (HHS) Department Appeals Board (DAB), an independent federal appeals board, ruled that Medicare must cover medically necessary care for individuals with gender dysphoria, just as it covers medically necessary care for those with other medical conditions.

June 2014 | Aaron Tax, Director of Federal Relations, SAGE

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Medicare And Transgender People

This fact sheet outlines the coverage now provided to transgender people under Medicare, as of May 2014.

May 2014 | National Center for Transgender Equality

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Creating Equal Access to Quality Health Care for Transgender Patients: Transgender-Affirming Hospital Policies

Creating Equal Access to Quality Health Care for Transgender Patients: Transgender-Affirming Hospital Policies is designed to assist hospitals to not only align with the best practices in the field for transgender patients but also to comply with legal and regulatory mandates.

November 2013 | Lambda Legal Human Rights Campaign Foundation New York City Bar Association

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LGBT People: Let’s Talk About Ageism

This article was originally written on The Huffington Post by Robert Espinoza, the Senior Director of Public Policy and Communications of Services & Advocacy for GLBT Elders (SAGE).

August 2013 | Robert Espinoza

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Affirmative Care for Transgender and Gender Non-Conforming People: Best Practices for Front-line Health Care Staff

In collaboration with transgender health care providers, researchers and front-line staff, Fenway Institute of Health created a helpful tool of best practices for front-line health care staff to provide affirmative care for transgender and gender non-conforming individuals.

April 2013 | The National LGBT Health Education Center

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Federal Update: ACA and Gender Discrimination

This news update describes the clarification that the Affordable Care Act (ACA), President Obama’s Healthcare Reform Law, bars discrimination on the basis of gender identity and sex stereotyping, which may include discrimination based on sexual orientation.

September 2012 | Aaron Tax, SAGE

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Health Care Rights and Transgender People

This document outlines the health care rights of transgender people and how to file complaints of health care discrimination.

August 2012 | National Center for Transgender Equality

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Trans Aging: We’re Still Here!

This fact sheet offers an overview of some of the issues facing transgender older adults and answers some common questions.

July 2012 | Lamda Legal

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Top 10 Ways to Begin Creating LGBT Safety & Inclusivity for Aging Services

A handy list of tips for aging service providers on creating LGBT-affirming programs and agencies.

June 2012 | SAGE/National Resource Center on LGBT Aging

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Improving the Lives of Transgender Older Adults: Recommendations for Policy and Practice

This publication addresses the concerns of transgender older adults on issues such as financial security, health and overall well-being.

June 2012 | Services & Advocacy for GLBT Elders (SAGE) and the National Center for Transgender Equality

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Gaining Visibility: The Challenges Facing Transgender Elders

This article examines the realities of various transgender older adults around the country, from North Carolina to Colorado. This article originally appeared in “Improving the Lives of Transgender Older Adults,” by SAGE and the National Center for Transgender Equality.

May 2012 | Sean Kennedy

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I have a Transgender Client…Now What?

This fact sheet for service providers of older adults provides answers to commonly asked questions regarding transgender clients.

May 2012 | Loree Cook-Daniels Policy Director FORGE Transgender Aging Network

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Long-term Services and Supports for Transgender People

This article discusses the policy implications of the growing number of transgender older adults and the need for increased long-term services and support for this marginalized population.

May 2012 | Harper Jean Tobin, Policy Counsel, National Center for Transgender Equality

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Transgender Inclusion for LGBT Organizations

This article addresses how organizations serving LGBT older adults can better serve transgender people.

May 2012 | Harper Jean Tobin, Policy Counsel, National Center for Transgender Equality

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A Blueprint for Equality: A Federal Agenda for Transgender People

The Blueprint for Equality presents an ambitious agenda for the transgender equality movement through federal policy change.

March 2012 | National Center for Transgender Equality

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Know Your Rights: Fair Housing and Transgender People

This document outlines the housing rights of transgender people and how to file complaints of housing discrimination.

March 2012 | National Center for Transgender Equality

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Gathering Data on Sexual Orientation and Gender Identity in Clinical Settings

This publication addresses the issue of how to obtain sexual orientation and gender identity data in clinical settings. It provides guidance on how to ask questions on patient registration forms and how clinicians can ask questions during medical visits. This second brief addresses concerns about confidentiality with EHRs and other potential barriers to collecting data on LGBT identity.

February 2012 | The Fenway Institute

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Understanding the New Passport Gender Change Policy

This resource from the National Center for Transgender Equality provides information about when you need a passport and addresses specific concerns for transgender people, including how to change your name and gender information on your passport, how to apply for a new passport, and more.

January 2012 | National Center for Transgender Equality

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A Guide to LGBT Caregiving – Spanish Edition (Una guía para el cuidado de personas LGBT )

Esta guía, escrita en Español, examina las situaciones que surgen a raíz del cuido a personas dentro de la comunidad LGBT. Personas dentro de dícha comunidad encuentran retos especiales ya sea fungiendo como la persona que brinda el cuido o la que lo recibe.

December 2011 | Next Step in Care United Hospital Fund and SAGE

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Executive Summary: The Health Report: Resilience and Disparities among LGBT Older Adults

This is an executive summary of the full report.

November 2011 | Karen Fredericksen-Goldsen Hyun-Jun Kim and Jayn Goldsen

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The Aging and Health Report: Disparities and Resilience among Lesbian, Gay, Bisexual, and Transgender Older Adults

This publication is the first national federally-funded project to examine LGBT aging and health. It documents significant health disparities impacting LGBT older adults as they age, including disability, physical and mental distress, victimization, discrimination, and lack of access to supportive aging and health services.

November 2011 | Karen I. Fredriksen-Goldsen PhD Hyun-Jun Kim Charles A. Emlet Anna Muraco Elena A. Erosheva Charles P. Hoy-Ellis MSW Jayn Goldsen BS Heidi Petry

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Standards of Care for the Health of Transsexual, Transgender, and Gender Nonconforming People

The goal of this publication is to provide clinical guidance for health professionals to assist transsexual, transgender, and gender nonconforming people with safe and effective pathways to achieving lasting personal comfort with their gendered selves, in order to maximize their overall health, psychological well-being, and self-fulfillment.

October 2011 | The World Professional Association for Transgender Health (WPATH)

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Helena Bushong: In Her Own Words

Helena Bushong, a 60-year-old trans woman who lives with HIV, tells us her story.

September 2011 | Helena Bushong

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Injustice at Every Turn: A Look at Black Respondents in the National Transgender Discrimination Survey

Through a partnership with several organizations, the purpose of the National Transgender Discrimination Survey was to measure the experiences of discrimination within the transgender community. The results show that transgender people faced bias that affects all areas of life.

September 2011 | National Black Justice Coalition National Center for Transgender Equality and National Gay and Lesbian Task Force

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The Age of LGBT Aging (Keynote address from TransFaith in Color 2011 national conference)

The Age of LGBT Aging was the Keynote address from TransFaith in Color 2011 national conference. The conference was hosted by the Freedom Center for Social Justice. Additionally, this speech was posted on the web site for Southerners on New Ground (SONG).

July 2011 | Robert Espinoza

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Trans Power and Control Tactics

This short document lists trans-specific power and control tactics that can be used against and by trans people in couple relationships.

July 2011 | FORGE

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FORGE Transgender Aging Network Services and Resources

A list of available services and resources about transgender aging.

June 2011 | FORGE Transgender Aging Network

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Selected Transgender Aging Network Publications

A list of various policy briefs, practice tips and other documents available about transgender aging.

June 2011 | FORGE Transgender Aging Network

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Veterans Health Administration Transgender Healthcare Directive

Q & A by National Center for Transgender Equality explaining the transgender healthcare directive issued by the Veterans Health Administration.

June 2011 | National Center for Transgender Equality

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Integrating Lesbian, Gay, Bisexual and Transgender Older Adults into Aging Policy and Practice

The National Academy on an Aging Society teamed up with SAGE to publish this edition of the Public Policy and Aging Report discussing a number of different policy areas as they relate to LGBT aging.

June 2011 | National Academy on an Aging Society; SAGE

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Fear, Discrimination and Abuse: Transgender Elders and the Perils of Long-Term Care

This is a short, basic article on scenarios transgender older adults may face in assisted living or long-term care facilities. It cites FORGE and Loree Cook-Daniels, as well as Improving the Lives and Injustice at Every Turn.

March 2011 | Daniel Redman, AgingToday

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Injustice at Every Turn: Report of the National Transgender Discrimination Survey

Study released by the National Gay and Lesbian Task Force and National Center for Transgender Equality (NCTE) about the level of discrimination against the transgender population.

February 2011 | The National Gay and Lesbian Task Force; National Center for Transgender Equality (NCTE)

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Talking About Transgender-Inclusive Non-Discrimination Laws

This short booklet gives the reader talking points when faced with conversations that cite falsehoods or misinformation about transgender inclusion (such as “bathroom panic”). It also highlights non-discrimination policies and ultimately summarizes why transgender people should be protected with regard to employment, housing, and public accommodations.

January 2011 | Movement Advancement Project

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Answers to Your Questions about Transgender People, Gender Identity, and Gender Expression

This publication is a fact sheet, written in a Q&A format, about transgender issues, differences between sex and gender, types of discrimination transgender people may face, ways to be supportive of trans friends or family, and a significant listing of resources and places to seek out more information.

January 2011 | American Psychological Association

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Letter from Social Security Administration to National Center for Transgender Equality Explaining Gender Data as Optional

This letter from the Social Security Administration to the National Center for Transgender Equality explains that gender data is optional, and should not be a basis for any adverse action against an employee. The letter recommends that employers not submit gender data to avoid any problems.

November 2010 | National Center for Transgender Equality

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Overcoming Voting Obstacles: A Resource From the National Transgender Equality Council

Transgender people may find voting to be an intimidating process for many reasons. This document lays out the issues that transgender people may face when attempting to vote and ways to overcome those issues.

September 2010 | National Center for Transgender Equality

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Snapshot Report: Advancing Transgender Equality

In this publication, the Movement Advancement Project discusses the barriers to equality and challenges the transgender population faces. The four major categories covered are: physical and mental health, safety and physical security, legal documentation and relationships, and employment and self-sufficiency.

August 2009 | Movement Advancement Project

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2009 Directory of LGBTQ People of Color Organizations and Projects in the U.S.

Funders for Lesbian and Gay Issues has updated the directory of organizations listed in “Building Communities: Autonomous LGBTQ People of Color Organizations in the U.S,” and included projects housed in broader-themed organizations that explicitly address LGBTQ people of color.

January 2009 | Funders for LGBTQ Issues

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Sexual Violence, Elder Abuse, and Sexuality of Transgender Adults Age 50+: Results of Three Surveys

This article includes information on what transgender older adults view as elder abuse, along with their experiences of sexual violence.

June 2008 | Loree Cook-Daniels and Michael Munson

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Opening the Door to the Inclusion of Transgender People

This guide will provide practical ideas for how LGBT organizations can take concrete steps to providing a more welcoming environment for transgender people. It will also directly address the challenges and opportunities that arise in this process.

January 2008 | Lisa Mottet; Justin Tanis

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10 Tips for Working with Transgender Individuals

This tip sheet is intended for health care providers to become more culturally competent in working with transgender individuals.

October 2005 | Transgender Law Center

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Transitioning Our Shelters: A Guide to Making Homeless Shelters Safe for Transgender People

Homelessness is a crisis in the United States. With this challenge, it can be hard for shelters to figure out how to make their shelters safe for transgender people. This publication is for shelters that wish to make their shelters safe for all people by making a few minor but important policy adjustments.

January 2003 | National Gay and Lesbian Task Force and the National Coalition for the Homeless

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Transgender Elders and SOFFAS: A primer

This paper was originally presented at the American Psychological Association Annual Convention in August 2002. It is an introductory explanation of the issues and concerns of aging transgender people and SOFFAS (Significant Others, Friends, Family and Allies), to begin the dialogue on what inclusion of trans people will really mean.

August 2002 | Loree Cook-Daniels

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