Identifying the transgender population in the medicare program

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Transgender Health

Transgender Health Volume 1.1, 2016 DOI: 10.1089/trgh.2016.0031

ORIGINAL ARTICLE

Open Access

Identifying the Transgender Population in the Medicare Program Kimberly Proctor,1,2,{ Samuel C. Haffer,1,{,* Erin Ewald,3 Carla Hodge,1 and Cara V. James1 Abstract Purpose: To identify and describe the transgender population in the Medicare program using administrative data. Methods: Using a combination of International Classification of Diseases ninth edition (ICD-9) codes relating to transsexualism and gender identity disorder, we analyzed 100% of the 2013 Centers for Medicare & Medicaid Services (CMS) Medicare Fee-For-Service (FFS) ‘‘final action’’ claims from both institutional and noninstitutional providers (*1 billion claims) to identify individuals who may be transgender Medicare beneficiaries. To confirm, we developed and applied a multistage validation process. Results: Four thousand ninety-eight transgender beneficiaries were identified, of which *90% had confirmatory diagnoses, billing codes, or evidence of a hormone prescription. In general, the racial, ethnic, and geographic distribution of the Medicare transgender population tends to reflect the broader Medicare population. However, age, original entitlement status, and disease burden of the transgender population appear substantially different. Conclusions: Using a variety of claims information, ranging from claims history to additional diagnoses, billing modifiers, and hormone prescriptions, we demonstrate that administrative data provide a valuable resource for identifying a lower bound of the Medicare transgender population. In addition, we provide a baseline description of the diversity and disease burden of the population and a framework for future research. Keywords: administrative data; disease burden; intersectionality; Medicare; transgender

Introduction Despite increased awareness and greater societal acceptance of people who are transgender, the inability to systematically identify and study the transgender population greatly hampers our capacity to conduct meaningful analysis of this group. Minimal representative national data exist,1 studies attempting to estimate the size and health needs of the transgender population have generally relied on nonprobability survey samples,2 and analyses utilizing more robust research designs have largely focused on single states.3 Furthermore, population-based studies of transgender individuals entitled to Medicare due to age (65 and older),

disability, or end-stage renal disease are nonexistent, demonstrating the need for more and better research focused on sexual and gender minorities, including the transgender population. Toward this end, recent research conducted at the Department of Veterans Affairs suggests the potential utility of using healthcare administrative data to identify persons who are transgender.4 Expanding on this work, we explore the use of Medicare billing data from the Centers for Medicare & Medicaid Services (CMS), the federal agency that administers the Medicare and Medicaid programs, to identify and describe Medicare’s transgender population.

1

Office of Minority Health, U.S. Centers for Medicare & Medicaid Services, Baltimore, Maryland. Center for Medicaid and CHIP Services, U.S. Centers for Medicare & Medicaid Services, Baltimore, Maryland. 3 NORC at the University of Chicago, Chicago, Illinois and Bethesda, Maryland. { Cofirst authors. 2

*Address correspondence to: Samuel C. Haffer, PhD, Office of Minority Health, U.S. Centers for Medicare & Medicaid Services, 7500 Security Boulevard [MS: S2-12-17], Baltimore, MD 21244-1850, E-mail: chris.haffer@cms.hhs.gov

U.S. Centers for Medicare & Medicaid Services. 2016; Published by Mary Ann Liebert, Inc. This Open Access article is in the public domain and may be used and reprinted without permission.

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The transgender population includes individuals whose gender identity, gender expression, or gender behavior does not typically conform to the sex they were assigned at birth.5 This community experiences a particularly high disease burden, including significantly higher rates of substance abuse,6–8 HIV/AIDS,9–11 and mental illness.10,12,13 Discrimination in the healthcare setting only exacerbates these adverse health outcomes. Twenty-eight percent of transgender persons report postponing medical care when sick due to discrimination, 19% report that doctors have refused to provide them care because of their transgender status, 28% report facing harassment in the medical setting, 2% report facing violence in a doctor’s office, and >50% report that they had to teach their doctor about transgender healthcare.2 Taken together, transgender persons experience suboptimal health outcomes across a variety of areas while systematically lacking access to the institutions that have the ability to address these medical needs. Even when transgender persons are able to receive care, insurers routinely deny treatment related to medical transitions. Transitioning is the process of living as the gender with which a transgender person identifies, rather than the gender assigned to them at birth.2 Medical transitions include any type of transgender-related surgery, such as sex-reassignment surgery or cosmetic procedures, and hormone therapy, such as taking prescriptions for cross-sex hormones. Medical transitions are particularly relevant for the Medicare program, which covers certain aspects of these medical treatments and includes this information in Medicare claims data. Until 2015, providers treating patients enrolled in Medicare used the International Classification of Diseases ninth edition (ICD-9) to indicate a patient’s specific medical diagnoses when submitting medical claims to CMS. ICD-9 contains multiple diagnosis codes that are transgender specific, including the following codes14: 302.50 (Transsexualism with unspecified sexual history), 302.51 (Transsexualism with asexual history), 302.52 (Transsexualism with homosexual history), 302.53 (Transsexualism with heterosexual history), 302.6 (Gender Identity Disorder [GID] in children), and 302.85 (GID in adolescents or adults). CMS also advises providers to utilize two billing modifiers that apply to the transgender population, including the condition code 45 modifier and the KX modifier. Medicare billing modifiers are two-digit codes appended to procedure codes or Healthcare Common Procedure

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Coding System (HCPCS) codes that provide additional information about the billed procedures.15,16 Providers use billing modifiers to avoid rejection of claims with a gender/procedure conflict. For example, the CMS system will reject a claim where a physician provided a female pelvic examination for a male beneficiary, as female pelvic examinations are considered sex specific (i.e., only for females). Because transgender beneficiaries may have changed their sex on record, they are at a high risk for experiencing gender/procedure conflicts. In this instance, a transman (female to male transition) may have his claim for a medically necessary pelvic examination rejected inappropriately. Therefore, condition code 45 and the KX modifier are used to process claims with gender-specific editing that CMS would normally reject due to gender/procedure mismatches. A list of the gender-specific procedure codes related to condition code 45 and the KX modifier is included in Appendix Table 1. Similar to diagnosis codes and billing modifiers, CMS also maintains a record of each Medicare beneficiary’s prescriptions. The Medicare Part D prescription drug plan covers medically necessary hormones for transgender persons, such as cross-sex hormones. Records of these prescriptions are available in CMS’s administrative files and include the generic and brand names of prescription drugs, as well as details about the prescription. A list of hormone therapy-related prescription drugs is included in Appendix Table 2. As a result, it may be possible to identify transgender Medicare beneficiaries using one or a combination of these diagnosis codes, billing modifiers, and prescription drug events. Methods Utilizing the CMS Chronic Conditions Data Warehouse (CCW), which contains CMS data on Medicare and Medicaid beneficiaries and their claims, we analyzed 100% of the CMS Fee-For-Service (FFS) final action claims from both institutional and noninstitutional providers for calendar year 2013. These claims included inpatient and outpatient hospital claims, carrier claims (e.g., physicians, physician assistants, nurse practitioners), and claims from skilled nursing facilities, home health agencies, hospice care, and those relating to durable medical equipment. In total, this covered *1 billion claims. In the first component of the analysis, we searched each claim for any occurrence in any position of diagnosis codes 302.50, 302.51, 302.52, 302.53, 302.6, or


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302.85. Once we identified the universe of claims meeting our criteria, we used the unique Medicare beneficiary identifier present on each claim to identify unique observations. Following this identification process, we used the unique beneficiary identifier to link to the Medicare Enrollment and Medicare Part D Data in the CCW. Because administrative records contain a degree of error and the billing modifiers are not unique to the transgender community, the data potentially contain a high probability of producing false positives, in which nontransgender beneficiaries are identified as transgender. To address this concern, we developed a supplementary method for validating the initial classification. The first validation step analyzes the repeated application of ICD-9 codes 302.50, 302.51, 302.52, 302.53, 302.6, and/or 302.85, with persons receiving more than one diagnosis in 2013 having a validated classification. The second and third validation steps analyze the relevant ICD-9 codes over time. If the beneficiary had one or more of these diagnoses in the preceding year (2012) or subsequent year (2014), indicating an ongoing trend of receiving the diagnosis, the classification was validated. The fourth validation step incorporated data on ICD-9 code 259.9 (Unspecified Endocrine Disorder), which is frequently used by the transgender community to combat the perceived stigma of a GID diagnosis. If a beneficiary received at least one diagnosis from the transgender-specific ICD-9 codes and also received a diagnosis of 259.9, the classification was validated. The fifth validation step incorporated prescriptions for sex hormones, with persons receiving a transgender-specific diagnosis code and a prescription for a sex hormone representing a validated classification. The sixth validation step examined the principal diagnosis code and, if the principal diagnosis code was from a transgender-specific ICD-9 code, that observation was validated. Finally, the seventh and eighth validation steps incorporated the billing claims modifiers to validate classifications. If a beneficiary received a relevant ICD-9 code and had at least one claim containing the condition code 45 modifier or the KX modifier, the classification was validated. Given the limitations of using ICD-9 259.9, sex hormones, and claim modifiers to identify transgender Medicare beneficiaries, these aspects of medically transitioning were only included as validation steps, rather than unique identifiers. Although this conservative approach restricts the size of the cohort, it is the only mechanism for guaranteeing that nontransgender per-

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sons are not misclassified as transgender. To demonstrate, there were over 5000 Medicare beneficiaries in 2013 with a claim containing the KX modifier or condition code 45 and a gender/procedure conflict, with only 3.90% of these beneficiaries receiving a transgender-specific ICD-9 diagnosis code. Given our limited ability to determine if the remaining 96.10% of these beneficiaries are transgender or not, we recommend that researchers avoid utilizing these modifiers alone and incorporate additional data, such as ICD-9 codes, to classify beneficiaries as transgender. Results Enumerating Medicare’s transgender population Using this methodology, we identified 4098 persons as transgender Medicare beneficiaries. Table 1 demonstrates these findings along with results from the validation logic. This classification method was highly accurate, with 89.26%, or 3658 persons, having enough information in their claims history to validate their classification as transgender. This demonstrates that researchers interested in studying Medicare’s transgender population can identify a meaningfully large and accurate population using ICD-9 codes in conjunction with supplementary claims data. This does not imply that the 10.74% of observations not validated are incorrectly classified or that this method identifies all transgender persons enrolled in Medicare, rather, it provides a conservative estimate (lower bound) of Medicare’s transgender population and details a methodology for identifying and validating this population using administrative data. Consequently, these tools provide a replicable foundation for researchers interested in analyzing health outcomes in the transgender community. Table 1 also demonstrates the validation results in greater detail. For individuals identified using only ICD-9 codes, the majority of beneficiaries (66.03%) had more than one claim with a transgender-specific ICD-9 code within the calendar year. Other validation methods, such as using claims from bordering calendar years and hormone prescriptions, had very similar results. Approximately, forty percent of the beneficiaries identified by transgender-specific ICD-9 codes had similar claims in 2012, 2014, filled a prescription for a sex hormone in 2013, or received a transgender-specific principal diagnosis code. A considerably smaller number of transgender beneficiaries had claims with ICD-9 code 259.9 or billing modifiers, although these validation methods did validate >700 observations. In total, the results indicate that our validation methodology


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Table 1. Identification and Validation Logic Transgender Medicare Beneficiaries

a

ICD-9 diagnosis codes 302.50, 302.51, 302.52, 302.53, 302.6, 302.85 Validation method ICD-9 302 series diagnosis code and 1 or more of the following:

More than 1 claim with an ICD-9 302 series diagnosis code in 2013 1 or more claims with an ICD-9 302 series diagnosis code in 2012 1 or more claims with an ICD-9 302 series diagnosis code in 2014 1 or more claims with an ICD-9 259.9 diagnosis code in 2013 1 or more prescriptions for a sex hormone in 2013 Principal diagnosis code is from ICD-9 302 series 1 or more CC 45 modifier 1 or more KX modifier

No. identified

No. validated

% validated

4098

3658

89.26

No. validated

% validated

2706 1577 1937 568 2005 1736 167 26

66.03 38.48 47.26 13.86 48.89 42.36 4.08 0.6

Each validation step is calculated independently from all other validation steps, and ‘‘% validated’’ is calculated from the total number of transgender beneficiaries identified (N = 4098). a Referred to as the 302 series for the purposes of this table. ICD-9, International Classification of Diseases ninth edition.

supplements the initial classifications by incorporating additional detail and analyzing the validity of using administrative data to identify the transgender population. Demographic variability in Medicare’s transgender population Using this foundation to identify transgender Medicare beneficiaries, analyzing their demographic characteristics also helps describe this population. Results demonstrate that Medicare’s transgender population is racially and ethnically diverse, spans the entire United States, and experiences many chronic conditions. Analyses reported here utilize the entire cohort of 4098 individuals identified as transgender (3658 identified and validated through administrative data and 440 identified but not validated through administrative data). We conducted separate analyses (not shown), which excluded the 440 individuals for whom we have no additional claims-based validation information. However, there were no systematic or substantive differences in the results. Therefore, we report results on the entire cohort. Beginning with race, the data demonstrate that the transgender Medicare population contains members from all racial and ethnic groups.{ This population is racially and ethnically diverse, with substantial representation among Whites, Blacks/African Americans, and Hispanics. Figure 1 displays the distribution of racial { Due to the high degree of error in Centers for Medicare & Medicaid Services (CMS’s) race/ethnicity data this analysis uses CMS’s RTI race code to identify a beneficiary’s race.17–19

and ethnic identity within the transgender population. In this population of transgender persons, Whites comprise 73.99% of the total population, Blacks/African Americans comprise the next largest group, representing 15.37% of the transgender Medicare population, and Hispanics, Asians/Pacific Islanders (APIs), American Indians/Alaska Natives (AIANs), Unknowns, and Others comprise relatively smaller proportions of the transgender Medicare population. This analysis of the racial and ethnic diversity of the transgender population is significant, as >85% of studies that examine sexual and gender minorities fail to report data on race.20 This lack of data on the racial and ethnic diversity of transgender persons inhibits our ability to understand the intersectionality of gender identity and racial/ethnic identity, which is expected to have important effects on health outcomes. Because research has consistently identified the prevalence of minority health disparities,21–26 these disparities may disproportionately affect the diverse transgender community. Therefore, understanding how race and ethnicity interact with transgender identity is an important component of studying transgender health and this analysis provides the foundation for future research on this topic. The transgender population enrolled in the Medicare program displays a high level of geographic diversity. Figure 2 demonstrates that transgender Medicare beneficiaries reside in every state, with many states containing large populations. California contains the largest number of transgender Medicare beneficiaries,


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FIG. 1.

Racial/ethnic identification of transgender beneficiaries.

with 562 beneficiaries. New York (282), Texas (201), Florida (198), Massachusetts (179), Washington (173), Ohio (146), Minnesota (146), Michigan (145), Pennsylvania (116), Illinois (115), Wisconsin (101), and Georgia (100) also contain large populations,

FIG. 2.

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with each state containing 100 or more transgender beneficiaries. This is an important finding, as it demonstrates that the transgender population spans the entire United States, making transgender health relevant to local providers across the entire country.

Geographic distribution of transgender beneficiaries.


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FIG. 3.

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Age distribution of transgender beneficiaries.

Unlike the racial, ethnic, and geographic distribution of the transgender population, which tends to reflect broader population distributions, the age, original entitlement status, and chronic condition burden of the transgender population appear substantially different. Figure 3 displays the age distribution of the transgender population, showing that the majority of transgender Medicare beneficiaries were under age 65 in 2013 (76.65%). This is a somewhat surprising result, as age is the primary mechanism through which most Americans qualify for Medicare. To demonstrate, 75.55% of the general Medicare population qualified for Medicare through Old Age and Survivors Insurance (OASI), indicating that the majority are age 65 or older. The transgender Medicare population, conversely, primarily qualified for Medicare through Disability Insurance (84.06%), implying that many transgender persons enrolled in the program are disabled. This trend reflects an almost exact reversal of the general population’s Medicare eligibility. Thus, the transgender population may be disproportionately disabled relative to the general Medicare population, which suggests an avenue for future research that examines these differences. Using CMS’s chronic condition categories, which analyze 60 chronic medical conditions and other chronic or potentially disabling conditions, Figure 4 highlights the chronic condition prevalence in the Medicare transgender population, demonstrating the significant burden placed on many beneficiaries. This is particularly relevant for depression, which has affected 81.79% of those under the age of 65. Because three-quarters of

the transgender population has been diagnosed with depression at some point during their life, the data suggest that the community disproportionately suffers from depression. Other mental health issues, such as posttraumatic stress disorder, schizophrenia, psychotic disorders, anxiety disorders, and major depressive affective disorders, also affect a large proportion of the population, demonstrating the significant mental health burden facing transgender Medicare enrollees. This echoes findings from previous studies,13 which report that there is a high prevalence of depression in the transgender community and transgender persons are more likely to report depression if they have not begun a medical transition. This finding suggests an opportunity for future research that examines the role that receiving medically necessary treatment may play in reducing depression rates and improving the mental health of transgender beneficiaries. Hyperlipidemia and hypertension also affect the majority of transgender beneficiaries, with 58.49% of beneficiaries reporting either condition. This is especially relevant for those under the age of 65, with a majority of those in this age category reporting these chronic conditions, even though they are typically associated with advancing age.26,27 This is consistent with previous studies on the transgender population28 and suggests a need for additional research that analyzes the association between medical transitions and hyperlipidemia/hypertension, which appear to affect a statistically high proportion of the transgender population, relative to their age. Other conditions, such as tobacco


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FIG. 4.

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Chronic conditions and the transgender Medicare population.

and drug use disorders, fibromyalgia, and other forms of chronic pain or fatigue, obesity, anemia, rheumatoid arthritis/osteoarthritis, asthma, diabetes, and heart disease, affect more than one-quarter of the population and reflect the broader trend of the transgender community reporting a disproportionately high disease burden. Future research that examines the causes of these high prevalence rates would help inform the treatment of transgender Medicare beneficiaries and explain why these diseases are manifesting in transgender persons at early ages. Discussion Using CMS’s administrative data, we were able to identify and validate nearly 3700 transgender beneficiaries enrolled in Medicare during the 2013 calendar year. Using a variety of claims information, ranging from claims history to additional diagnoses, billing modifiers, and hormone prescriptions, we demonstrate that administrative data provide a valuable resource for studying the transgender population. ICD-9 codes specific to medical transitions are especially useful, with 90% of those identified using this method being validated. Therefore, ICD-9 codes provide an excellent foundation for future research on the transgender pop-

ulation, and we encourage researchers interested in transgender health and health outcomes to utilize this methodology for future research. The resulting cohort of transgender Medicare beneficiaries also demonstrates the significant racial, ethnic, and geographic diversity of the population. The results indicate that the transgender population is very diverse, containing members of every racial and ethnic group and residing in every U.S. state. Because fewer than 15% of studies on the health status of lesbian, gay, bisexual, and transgender (LGBT) persons include an analysis of race,20 this examination provides an important contribution to health services research. The geographic distribution of transgender Medicare beneficiaries also provides important implications for transgender-specific care. Given that >50% of transgender persons report having to teach their provider about transgender healthcare,2 these results suggest that providers across the nation should better prepare for providing care to Medicare’s transgender population, as there is a high probability that providers may encounter transgender patients. This is particularly relevant, given the lack of LGBT outreach across the country, with few agencies providing LGBT-specific training or outreach.29 Because agencies that provide


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LGBT-specific services are more likely to address LGBT issues, receive LGBT assistance requests, and understand the unique needs facing the community,29 these results provide support for increasing education and training throughout the provider community. This geographic distribution may also help inform the areas that may benefit most from targeted interventions, such as California, New York, and Texas, which all have large transgender populations. The data provide particularly valuable insight regarding the burden of chronic conditions in the community, given the incredibly high prevalence of disability and the very high rates of certain conditions. For example, nearly 80% of the transgender community has been diagnosed with depression during their lifetime. Not only does this signal the heightened level of medical need within the community but it also lays the foundation for future research that examines the prevalence and causes of chronic conditions in the transgender community. Future research could compare the chronic condition burden to the burden found in a matched cohort, helping to clarify the role that being transgender plays in affecting health outcomes. By identifying patterns of transgender health disparities, ranging from discrimination and stigma to the potential long-term effects of hormone therapy, health services researchers will be better able to address the care of transgender persons in the medical setting. Limitations of Medicare’s transgender-related data Although CMS’s administrative data contain numerous methods for identifying transgender Medicare beneficiaries, these identification methods are not without limitations. CMS data are limited in their ability to identify all transgender beneficiaries because (1) they only identify transgender persons who are medically transitioning and/or have been diagnosed with GID, (2) their administrative data sets contain unobservable error, and (3) billing modifiers, alternative diagnosis codes, and hormone therapy fail to uniquely identify transgender persons. Because CMS data are based on medical claims for treatment, they only capture persons who are medically transitioning or who have been diagnosed with GID. Focusing on those who are medically transitioning is problematic, given that only 62% of transgender persons report using hormone therapy.2 Although an additional 23% hope to have hormone therapy in the future, only 62% to 85% of transgender persons want or utilize hormone therapy. Therefore, by focusing on medical

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transitions, this analysis may underestimate the size of the transgender population. Similarly, using ICD-9 codes related to GID may limit the sample, as GID diagnoses are highly controversial in the transgender community, with many transgender persons avoiding the diagnosis. The primary controversy surrounding the diagnosis is that it is considered a mental disorder, which carries the stigma of mental illness and potentially reinforces the gender binary that treats transgender persons as deviant.30 Because of this, some transgender persons will avoid the GID diagnosis, requesting other nontransgender-specific diagnoses. Among the most commonly used nontransgenderspecific diagnosis codes is ICD-9 code 259.9 (Unspecified Endocrine Disorder).31,32 Because transgender Medicare beneficiaries may not medically transition and/or may actively resist the GID diagnosis, using CMS data to identify transgender Medicare beneficiaries is expected to represent a conservative estimate of Medicare’s transgender community. Errors inherent to administrative data also pose a methodological problem to using administrative data to identify transgender Medicare enrollees. Numerous studies document the limitations of using administrative data to identify diseases, given wide variation in coding accuracy across conditions and settings.33 In the Medicare program specifically, a systematic analysis of Medicare claims data compared to medical charts revealed that the percentage of agreement between ICD-9 diagnosis and medical records was, on average, between 73.2% and 78.2%, with accuracy of diagnosis varying substantially across conditions.34 Additional Medicare data validations demonstrate that conditions such as diabetes are highly accurate (100% claims accuracy), while conditions such as alcohol and drug abuse are highly inaccurate (20% claims accuracy).35,36 Therefore, one can assume that using ICD-9 codes to estimate the transgender Medicare population contains a degree of inherent coding error, which may distort the population estimates. The final limitation of using CMS’s administrative data is the inability of billing modifiers to uniquely identify transgender beneficiaries. While the ICD-9 codes are specific to the transgender community, the billing modifiers are not. Because condition code 45 applies to both the transgender and intersex community, classifying all persons with a condition code 45 modifier as transgender may falsely classify intersex persons as transgender. Intersex persons are different from transgender persons, as they are born with a


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reproductive or sexual anatomy that does not fit typical definitions of male or female,37 making them a distinct subgroup of gender minorities. This measurement problem also affects the KX modifier, which applies to multiple types of claims, rather than only those with a gender/procedure conflict. For example, even though the KX modifier might apply to a claim for a transman receiving a female pelvic examination, it might also apply to a female born and identified beneficiary receiving two pelvic examinations in the same calendar year. Because neither of these modifiers applies solely to the transgender community, they cannot be used as a standalone method for classifying beneficiaries as transgender. Overall, our results demonstrate that administrative data are a valuable resource for identifying the medically transitioning Medicare transgender population and that using ICD-9 codes and billing modifiers are a valid and replicable method that is relevant to many data systems. Using this method, we have made a number of important contributions to the literature, as there are currently no other studies that use Medicare claims data to identify transgender persons. First, we have developed a framework for identifying transgender persons using administrative data, as well as providing a method for validating these results. By replicating the methods outlined in this analysis, researchers can estimate the size of the transgender population and use this data to further analyze health disparities and outcomes in the transgender community. Second, we have provided a baseline description of the diversity and disease burden of the population, laying the foundation for future research programs that expand on this data and statistically model these relationships. Finally, we have proposed numerous avenues of future work to build upon this analysis, including an examination of the intersection between race and gender identity, an examination of the chronic condition burden of transgender persons relative to a matched cohort, and an examination of the underlying causes of chronic conditions in transgender persons. In conclusion, this analysis helps fill the void regarding research on Medicare’s transgender population with the goal of informing and encouraging future research on gender minorities. Disclaimer The views expressed in this article are those of the authors and do not necessarily reflect the position or policy of the Centers for Medicare and Medicaid Services,

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the U.S. Department of Health and Human Services, or NORC at the University of Chicago. Author Disclosure Statement No competing financial interests exist. References 1. Graham R, Berkowitz B, Blum R, et al. The Health of Lesbian, Gay, Bisexual, and Transgender People: Building a Foundation for Better Understanding. Washington, DC: Institute of Medicine, 2011. 2. Grant JM, Mottet L, Tanis JE, et al. Injustice at every turn: a report of the national transgender discrimination survey: National Center for Transgender Equality; 2011 [August 18, 2015]. Available from: www .thetaskforce.org/static_html/downloads/reports/reports/ntds_full.pdf (accessed November 22, 2016). 3. Fredriksen-Goldsen KI, Kim H-J, Emlet CA, et al. The aging and health report: disparities and resilience among lesbian, gay, bisexual, and transgender older adults. Seattle, WA: Institute for Multigenerational Health, 2011. 4. Blosnich JR, Brown GR, Shipherd P, et al. Prevalence of gender identity disorder and suicide risk among transgender veterans utilizing veterans health administration care. Am J Public Health. 2013;103:e27–e32. 5. American Psychological Association Committee on Lesbian G, Bisexual, and Transgender Concerns. Answers to your Questions about Transgender People, Gender Identity, and Gender Expression 2014 [August 18, 2015]. Available from: www.apa.org/topics/lgbt/transgender.aspx (accessed November 22, 2016). 6. Hughes TL, Eliason M. Substance use and abuse in lesbian, gay, bisexual and transgender populations. J Prim Prev. 2002;22:263–298. 7. Jordan KM. Substance abuse among gay, lesbian, bisexual, transgender, and questioning adolescents. School Psychol Rev. 2000;29:201–206. 8. Lombardi EL, van Servellen G. Building culturally sensitive substance use prevention and treatment programs for transgendered populations. J Subst Abuse Treat. 2000;19:291–296. 9. Herbst JH, Jacobs ED, Finlayson TJ, et al. Estimating HIV prevalence and risk behaviors of transgender persons in the United States: a systematic review. AIDS Behav. 2008;12:1–17. 10. Clements-Nolle K, Marx R, Katz M. Attempted suicide among transgender persons: the influence of gender-based discrimination and victimization. J Homosex. 2006;51:53–69. 11. Nemoto T, Operario D, Keatley J, Villegas D. Social context of HIV risk behaviours among male-to-female transgenders of colour. AIDS Care. 2004;16:724–735. 12. Mustanski BS, Garofalo R, Emerson EM. Mental health disorders, psychological distress, and suicidality in a diverse sample of lesbian, gay, bisexual, and transgender youths. Am J Public Health. 2010;100:2426–2432. 13. Rotondi NK, Bauer GR, Scanlon K, et al. Prevalence of and risk and protective factors for depression in female-to-male transgender Ontarians: trans PULSE Project. Can J Commun Ment Health. 2012;30:135–155. 14. Centers for Medicare & Medicaid Services. ICD-9 Code Lookup 2015 [August 18, 2015]. Available from: https://www.cms.gov/Medicare/ Coding/ICD9ProviderDiagnosticCodes/codes.html (accessed November 22, 2016). 15. Centers for Medicare & Medicaid Services—CMS Manual System. Pub 100-04: Transmittal 1877-Instructions Regarding Processing Claims Rejecting for Gender/Procedure Conflict 2009a [August 18, 2015]. Available from: www.cms.gov/Regulations-and-Guidance/Guidance/ Transmittals/downloads/R1877CP.pdf (accessed November 22, 2016). 16. Centers for Medicare & Medicaid Services—MLM Matters. MM6638: Instructions Regarding Processing Claims Rejecting for Gender/ Procedure Conflict 2009b. Available from: www.cms.gov/Outreach-andEducation/Medicare-Learning-Network-MLN/MLNMattersArticles/ downloads/MM6638.pdf (accessed November 22, 2016). 17. Arday SL, Arday DR, Monroe S, Zhang J. HCFA’s racial and ethnic data: current accuracy and recent improvements. Health Care Financ Rev. 2000;21:107–116. 18. Waldo DR. Accuracy and bias of race/ethnicity codes in the Medicare enrollment database. Health Care Financ Rev. 2004;26:61–72.


Proctor, et al.; Transgender Health 2016, 1.1 http://online.liebertpub.com/doi/10.1089/trgh.2016.0031

19. Zaslavsky AM, Ayanian JZ, Zaborski LB. The validity of race and ethnicity in enrollment data for Medicare beneficiaries. Health Serv Res. 2012;47(3 pt 2):1300–1321. 20. Boehmer U. Twenty years of public health research: inclusion of lesbian, gay, bisexual, and transgender populations. Am J Public Health. 2002;92:1125–1130. 21. Gornick ME, Eggers PW, Reilly TW, et al. Effects of race and income on mortality and use of services among Medicare beneficiaries. N Engl J Med. 1996;335:791–799. 22. Smedley BD, Stith AY, Nelson AR. Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care. Washington, DC: National Academies Press, 2002. 23. Virnig BA, Lurie N, Huang Z, et al. Racial variation in quality of care among Medicare + Choice enrollees. Health Aff. 2002;21:224–230. 24. Weech-Maldonado R, Morales LS, Elliott M, et al. Race/ethnicity, language, and patients’ assessments of care in Medicaid managed care. Health Serv Res. 2003;38:789–808. 25. Sequist TD, Schneider EC. Addressing racial and ethnic disparities in health care: using federal data to support local programs to eliminate disparities. Health Serv Res. 2006;41(4 pt 1):1451–1468. 26. Schneider KM, O’Donnell BE, Dean D. Prevalence of multiple chronic conditions in the United States’ Medicare population. Health Qual Life Outcomes. 2009;7:82. 27. Freid VM, Bernstein AB, Bush MA. Multiple chronic conditions among adults aged 45 and over: trends over the past 10 years. Women. 2012;45:64. 28. Shipherd JC, Mizock L, Maguen S, Green KE. Male-to-female transgender veterans and VA health care utilization. Int J Sex Health. 2012;24:78–87. 29. Knochel KA, Croghan CF, Moone RP, Quam JK. Training, geography, and provision of aging services to lesbian, gay, bisexual, and transgender older adults. J Gerontol Soc Work. 2012;55:426–443. 30. Lev AI. Disordering gender identity: gender identity disorder in the DSMIV-TR. J Psychol Human Sex. 2006;17:35–69. 31. Mayer G. Providing Cross-Gender Hormone Therapy for Transgender Patients Boston, MA: The Fenway Institute, 2013 [August 18, 2015]. Available from: www.lgbthealtheducation.org/wp-content/uploads/ Providing-Cross-Gender-Hormone-Therapy-to-Transgender-Patients.pdf (accessed November 22, 2016). 32. Callen-Lorde Community Health Center. Protocols for the Provision of Cross Gender Hormone Therapy 2012 [August 18, 2015]. Available from:

259

33.

34.

35.

36.

37.

www.tmeltzer.com/assets/callen-lorde-revised-protocols.pdf (accessed November 22, 2016). Yasmeen S, Romano PS, Schembri ME, et al. Accuracy of obstetric diagnoses and procedures in hospital discharge data. Am J Obstet Gynecol. 2006;194:992–1001. Fisher ES, Whaley FS, Krushat WM, et al. The accuracy of Medicare’s hospital claims data: progress has been made, but problems remain. Am J Public Health. 1992;82:243–248. Fowles JB, Fowler EJ, Craft C. Validation of claims diagnoses and selfreported conditions compared with medical records for selected chronic diseases. J Ambul Care Manage. 1998;21:24–34. Fowles JB, Lawthers AG, Weiner JP, Garnick DW. Agreement between physicians’ office records and Medicare Part B claims data. Health Care Financ Rev. 1995;16:189–199. Intersex Society of North America. What is Intersex? 2015 [August 18, 2015]. Available from: www.isna.org/faq/what_is_intersex (accessed November 22, 2016).

Cite this article as: Proctor K, Haffer SC, Ewald E, Hodge C, James CV (2016) Identifying the transgender population in the Medicare program, Transgender Health 1:1, 250–265, DOI: 10.1089/trgh.2016.0031.

Abbreviations Used AIANs ¼ American Indians/Alaska Natives APIs ¼ Asians/Pacific Islanders CCW ¼ Chronic Conditions Data Warehouse CMS ¼ Centers for Medicare & Medicaid Services FFS ¼ Fee-For-Service GID ¼ Gender Identity Disorder HCPCS ¼ Healthcare Common Procedure Coding System ICD-9 ¼ International Classification of Diseases ninth edition LGBT ¼ lesbian, gay, bisexual, and transgender OASI ¼ Old Age and Survivors Insurance

Appendix Table 1. Gender-Specific Procedure Codes Related to Condition Code 45 and the KX Modifier HCPCS

Valid sex

0071T 0072T 00842 00846 00851 00865 00906 00908 00914 00920 00921 00922 00924 00926 00928 00930 00932 00934 00936 00938 00940 00942

Female Female Female Female Female Male Female Male Male Male Male Male Male Male Male Male Male Male Male Male Female Female

Code description U/s leiomyomata ablate <200 U/s leiomyomata ablate >200 Anesth amniocentesis Anesth hysterectomy Anesth tubal ligation Anesth removal of prostate Anesth removal of vulva Anesth removal of prostate Anesth removal of prostate Anesth genitalia surgery Anesth vasectomy Anesth sperm duct surgery Anesth testis exploration Anesth removal of testis Anesth removal of testis Anesth testis suspension Anesth amputation of penis Anesth penis nodes removal Anesth penis nodes removal Anesth insert penis device Anesth vaginal procedures Anesth surgery on vaginal/urethral

HCPCS

Valid sex

57545 57550 57555 57556 57558 57700 57720 57800 58100 58110 58120 58140 58145 58146 58150 58152 58180 58200 58210 58240 58260 58262

Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female

Code description Remove cervix/repair pelvis Removal of residual cervix Remove cervix/repair vagina Remove cervix/repair bowel D and c of cervical stump Revision of cervix Revision of cervix Dilation of cervical canal Biopsy of uterus lining Bx done w/colposcopy add-on Dilation and curettage Myomectomy abdominal method Myomectomy vaginal method Myomectomy abdominal complex Total hysterectomy Total hysterectomy Partial hysterectomy Extensive hysterectomy Extensive hysterectomy Removal of pelvis contents Vaginal hysterectomy Vaginal hysterectomy including t/o (continued)


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Appendix Table 1. (Continued) HCPCS

Valid sex

Code description

HCPCS

Valid sex

Code description

00944 00948 00950 00952 01960 01961 01962 01963 01965 01966 01967 01968 01969 0336T 0500F 0501F 0502F 0503F 11976 19300 3015F 36460 37788 46744 46746 46748 50722 51845 51920 51925 52010 52270 52275 52285

Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Male Female Female Male Female Female Female Female Female Female Female Male Female Male Female

Anesth vaginal hysterectomy Anesth repair of cervix Anesth vaginal endoscopy Anesth hysteroscope/graph Anesth vaginal delivery Anesth cs delivery Anesth emergency hysterectomy Anesth cs hysterectomy Anesth inc/missed ab procedure Anesth induced ab procedure Anesth/analg vaginal delivery Anes/analg cs deliver add-on Anesth/analg cs hysterectomy add-on Lap ablat uterine fibroids Initial prenatal care visit Prenatal flow sheet Subsequent prenatal care Postpartum care visit Remove contraceptive capsule Removal of breast tissue Cerv cancer screen docd Transfusion service fetal Revascularization penis Repair of cloacal anomaly Repair of cloacal anomaly Repair of cloacal anomaly Release of ureter Repair bladder neck Close bladder–uterus fistula Hysterectomy/bladder repair Cystoscopy and duct catheter Cystoscopy and revise urethra Cystoscopy and revise urethra Cystoscopy and treatment

58263 58267 58270 58275 58280 58285 58290 58291 58292 58293 58294 58300 58301 58321 58322 58323 58340 58345 58346 58350 58353 58356 58400 58410 58520 58540 58541 58542 58544 58545 58546 58548 58550 58552

Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female

Vaginal hysterectomy w/t/o and vaginal repair Vaginal hysterectomy w/urinary repair Vaginal hysterectomy w/enterocele repair Hysterectomy/revise vagina Hysterectomy/revise vagina Extensive hysterectomy Vaginal hysterectomy complex Vaginal hysterectomy including t/o complex Vaginal hysterectomy t/o and repair complex Vaginal hysterectomy w/uro repair complex Vaginal hysterectomy w/enterocele complex Insert intrauterine device Remove intrauterine device Artificial insemination Artificial insemination Sperm washing Catheter for hysterography Reopen fallopian tube Insert heyman uteri capsule Reopen fallopian tube Endometrial ablate thermal Endometrial cryoablation Suspension of uterus Suspension of uterus Repair of ruptured uterus Revision of uterus Lsh uterus 250 g or less Lsh w/t/o ut 250 g or less Lsh w/t/o uterus above 250 g Laparoscopic myomectomy Laparomyomectomy complex Lap radical hyst Laparo-asst vaginal hysterectomy Laparovaginal hysterectomy including t/o

52402 52450 52601 52647 52648 52649 52700 53210 53215 53230 53235 53410 53415 53420 53425 53430 53440 53442 53502 53505 53510 53515 53520 53600 53601 53605 53620 53621 53660 53661 53665

Male Male Male Male Male Male Male Female Male Female Male Male Male Male Male Female Male Male Female Male Male Male Male Male Male Male Male Male Female Female Female

Cystourethro cut ejaculatory duct Incision of prostate Prostatectomy (turp) Laser surgery of prostate Laser surgery of prostate Prostate laser enucleation Drainage of prostate abscess Removal of urethra Removal of urethra Removal of urethra lesion Removal of urethra lesion Reconstruction of urethra Reconstruction of urethra Reconstruct urethra stage 1 Reconstruct urethra stage 2 Reconstruction of urethra Male sling procedure Remove/revise male sling Repair of urethra injury Repair of urethra injury Repair of urethra injury Repair of urethra injury Repair of urethra defect Dilate urethra stricture Dilate urethra stricture Dilate urethra stricture Dilate urethra stricture Dilate urethra stricture Dilation of urethra Dilation of urethra Dilation of urethra

58553 58554 58555 58558 58559 58560 58561 58562 58563 58565 58570 58571 58572 58573 58578 58579 58600 58605 58611 58615 58660 58661 58662 58670 58671 58672 58673 58679 58700 58720 58740

Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female

Laparovaginal hysterectomy complex Laparovaginal hysterectomy w/t/o complex Hysteroscopy dx sep procedure Hysteroscopy biopsy Hysteroscopy lysis Hysteroscopy resect septum Hysteroscopy remove myoma Hysteroscopy remove fb Hysteroscopy ablation Hysteroscopy sterilization Tlh uterus 250 g or less Tlh w/t/o 250 g or less Tlh uterus over 250 g Tlh w/t/o uterus over 250 g Laparo proc uterus Hysteroscope procedure Division of fallopian tube Division of fallopian tube Ligate oviduct(s) add-on Occlude fallopian tube(s) Laparoscopy lysis Laparoscopy remove adnexa Laparoscopy excise lesions Laparoscopy tubal cautery Laparoscopy tubal block Laparoscopy fimbrioplasty Laparoscopy salpingostomy Laparoscopy procedure oviduct–ovary Removal of fallopian tube Removal of ovary/tube(s) Adhesiolysis tube ovary (continued)


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Appendix Table 1. (Continued) HCPCS

Valid sex

53850 53852 53855 53860 54000 54001 54015 54050 54055 54056 54057 54060 54065 54100 54110 54111 54112 54115 54120 54125 54130 54135 54150 54160 54161

Male Male Male Female Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male

54162 54163 54164 54200 54205 54220 54230 54231 54235 54240 54250 54300 54304 54308 54312 54316 54318 54322 54324 54326 54328 54332 54336 54340 54344 54348 54352 54360 54380 54385 54390 54400 54401 54405 54406 54408 54410 54411 54415 54416

Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male

Code description

HCPCS

Valid sex

Code description

Prostatic microwave thermotx Prostatic rf thermotx Insert prost urethral stent Transurethral rf treatment Slitting of prepuce Slitting of prepuce Drain penis lesion Destruction penis lesion(s) Destruction penis lesion(s) Cryosurgery penis lesion(s) Laser surgery penis lesion(s) Excision of penis lesion(s) Destruction penis lesion(s) Biopsy of penis Treatment of penis lesion Treat penis lesion graft Treat penis lesion graft Treatment of penis lesion Partial removal of penis Removal of penis Remove penis and nodes Remove penis and nodes Circumcision w/regionl block Circumcision neonate Circum 28 days or older

58750 58752 58760 58770 58800 58805 58820 58822 58825 58900 58920 58925 58940 58943 58951 58952 58953 58954 58956 58957 58958 58960 58970 58974 58976

Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female

Repair oviduct Revise ovarian tube(s) Fimbrioplasty Create new tubal opening Drainage of ovarian cyst(s) Drainage of ovarian cyst(s) Drain ovary abscess open Drain ovary abscess percut Transposition ovary(s) Biopsy of ovary(s) Partial removal of ovary(s) Removal of ovarian cyst(s) Removal of ovary(s) Removal of ovary(s) Resect ovarian malignancy Resect ovarian malignancy Tah rad dissect for debulk Tah rad debulk/lymph remove Bso omentectomy w/tah Resect recurrent gyn mal Resect recur gyn mal w/lym Exploration of abdomen Retrieval of oocyte Transfer of embryo Transfer of embryo

Lysis penil circumic lesion Repair of circumcision Frenulotomy of penis Treatment of penis lesion Treatment of penis lesion Treatment of penis lesion Prepare penis study Dynamic cavernosometry Penile injection Penis study Penis study Revision of penis Revision of penis Reconstruction of urethra Reconstruction of urethra Reconstruction of urethra Reconstruction of urethra Reconstruction of urethra Reconstruction of urethra Reconstruction of urethra Revise penis/urethra Revise penis/urethra Revise penis/urethra Secondary urethral surgery Secondary urethral surgery Secondary urethral surgery Reconstruct urethra/penis Penis plastic surgery Repair penis Repair penis Repair penis and bladder Insert semirigid prosthesis Insert self-contd prosthesis Insert multi-comp penis prosthesis Remove muti-comp penis pros Repair multi-comp penis prosthesis Remove/replace penis prosthesis Remov/replc penis pros comp Remove self-contd penis pros Remv/repl penis contain pros

58999 59000 59001 59012 59015 59020 59025 59030 59050 59051 59070 59072 59074 59076 59100 59120 59121 59130 59135 59136 59140 59150 59151 59160 59200 59300 59320 59325 59350 59400 59409 59410 59412 59414 59425 59426 59430 59510 59514 59515

Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female

Genital surgery procedure Amniocentesis diagnostic Amniocentesis therapeutic Fetal cord puncture prenatal Chorion biopsy Fetal contract stress test Fetal nonstress test Fetal scalp blood sample Fetal monitor w/report Fetal monitor/interpret only Transabdom amnioinfus w/us Umbilical cord occlusion w/us Fetal fluid drainage w/us Fetal shunt placement w/us Remove uterus lesion Treat ectopic pregnancy Treat ectopic pregnancy Treat ectopic pregnancy Treat ectopic pregnancy Treat ectopic pregnancy Treat ectopic pregnancy Treat ectopic pregnancy Treat ectopic pregnancy D and c after delivery Insert cervical dilator Episiotomy or vaginal repair Revision of cervix Revision of cervix Repair of uterus Obstetrical care Obstetrical care Obstetrical care Antepartum manipulation Deliver placenta Antepartum care only Antepartum care only Care after delivery Cesarean delivery Cesarean delivery only Cesarean delivery (continued)


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Appendix Table 1. (Continued) HCPCS

Valid sex

Code description

HCPCS

Valid sex

Code description

54417 54420 54430 54435 54440 54450 54500 54505 54512 54520 54522 54530 54535 54550 54560 54600 54620

Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male

Remv/replc penis pros compl Revision of penis Revision of penis Revision of penis Repair of penis Preputial stretching Biopsy of testis Biopsy of testis Excise lesion testis Removal of testis Orchiectomy partial Removal of testis Extensive testis surgery Exploration for testis Exploration for testis Reduce testis torsion Suspension of testis

59525 59610 59612 59614 59618 59620 59622 59812 59820 59821 59830 59840 59841 59850 59851 59852 59855

Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female

Remove uterus after cesarean Vbac delivery Vbac delivery only Vbac care after delivery Attempted vbac delivery Attempted vbac delivery only Attempted vbac after care Treatment of miscarriage Care of miscarriage Treatment of miscarriage Treat uterus infection Abortion Abortion Abortion Abortion Abortion Abortion

54640 54650 54660 54670 54680 54690 54692 54699 54700 54800 54830 54840 54860 54861 54865

Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male

Suspension of testis Orchiopexy (fowler-stephens) Revision of testis Repair testis injury Relocation of testis(es) Laparoscopy orchiectomy Laparoscopy orchiopexy Laparoscope proc testis Drainage of scrotum Biopsy of epididymis Remove epididymis lesion Remove epididymis lesion Removal of epididymis Removal of epididymis Explore epididymis

59856 59857 59866 59870 59871 59897 59898 59899 64435 74440 74445 74710 74740 74742 74775

Female Female Female Female Female Female Female Female Female Male Male Female Female Female Female

Abortion Abortion Abortion (mpr) Evacuate mole of uterus Remove cerclage suture Fetal invas px w/us Laparo proc ob care/deliver Maternity care procedure N block inj paracervical X-ray male genital tract X-ray examination of penis X-ray measurement of pelvis X-ray female genital tract X-ray fallopian tube X-ray examination of perineum

54900 54901 55000 55040 55041 55060 55100 55110 55120 55150 55175 55180 55200 55250 55300

Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male

Fusion of spermatic ducts Fusion of spermatic ducts Drainage of hydrocele Removal of hydrocele Removal of hydroceles Repair of hydrocele Drainage of scrotum abscess Explore scrotum Removal of scrotum lesion Removal of scrotum Revision of scrotum Revision of scrotum Incision of sperm duct Removal of sperm duct(s) Prepare sperm duct x-ray

76801 76802 76805 76810 76811 76812 76813 76814 76815 76816 76817 76818 76819 76825 76826

Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female

Ob us <14 weeks single fetus Ob us <14 weeks addl fetus Ob us >/ = 14 weeks sngl fetus Ob us >/ = 14 weeks addl fetus Ob us detailed sngl fetus Ob us detailed addl fetus Ob us nuchal meas 1 gest Ob us nuchal meas add-on Ob us limited fetus(s) Ob us follow-up per fetus Transvaginal us obstetric Fetal biophys profile w/nst Fetal biophys profile w/o nst Echo examination of fetal heart Echo examination of fetal heart

55400 55450 55500 55520 55540 55550 55559 55600 55605 55650 55680 55700 55705 55706 55720 55725 55801

Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male Male

Repair of sperm duct Ligation of sperm duct Removal of hydrocele Removal of sperm cord lesion Revise hernia and sperm veins Laparo ligate spermatic vein Laparo proc spermatic cord Incise sperm duct pouch Incise sperm duct pouch Remove sperm duct pouch Remove sperm pouch lesion Biopsy of prostate Biopsy of prostate Prostate saturation sampling Drainage of prostate abscess Drainage of prostate abscess Removal of prostate

76827 76828 76830 76831 76941 76945 76946 76948 77057 78761 80055 81025 81500 81503 81507 81508 81509

Female Female Female Female Female Female Female Female Female Male Female Female Female Female Female Female Female

Echo examination of fetal heart Echo examination of fetal heart Transvaginal us non-ob Echo examination uterus Echo guide for transfusion Echo guide villus sampling Echo guide for amniocentesis Echo guide ova aspiration Mammogram screening Testicular imaging w/flow Obstetric panel Urine pregnancy test Onco (ovar) two proteins Onco (ovar) five proteins Fetal aneuploidy trisom risk Ftl cgen abnor two proteins Ftl cgen abnor three proteins (continued)


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Appendix Table 1. (Continued) HCPCS

Valid sex

Code description

HCPCS

Valid sex

Code description

55810 55812 55815 55821 55831 55840 55842 55845

Male Male Male Male Male Male Male Male

Extensive prostate surgery Extensive prostate surgery Extensive prostate surgery Removal of prostate Removal of prostate Extensive prostate surgery Extensive prostate surgery Extensive prostate surgery

81510 81511 81512 82120 82143 82731 84112 84135

Female Female Female Female Female Female Female Female

Ftl cgen abnor three anal Ftl cgen abnor four anal Ftl cgen abnor five anal Amines vaginal fluid qual Amniotic fluid scan Assay of fetal fibronectin Eval amniotic fluid protein Assay of pregnanediol

55860 55862 55865 55866 55870 55873 55875 55876 55899 55970 55980 56405 56420 56440 56441 56442 56501 56515 56605 56606 56620 56625 56630 56631 56632 56633 56634 56637 56640 56700 56805 56810 56820 56821 57000 57010 57020 57022 57023 57061 57065 57100 57105 57106 57107 57109 57110 57111 57112 57120 57130 57135 57150 57155 57156

Male Male Male Male Male Male Male Male Male Male Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female

Surgical exposure prostate Extensive prostate surgery Extensive prostate surgery Laparo radical prostatectomy Electroejaculation Cryoablate prostate Transperi needle place pros Place rt device/marker pros Genital surgery procedure Sex transformation m to f Sex transformation f to m I and d of vulva/perineum Drainage of gland abscess Surgery for vulva lesion Lysis of labial lesion(s) Hymenotomy Destroy vulva lesions sim Destroy vulva lesion/s compl Biopsy of vulva/perineum Biopsy of vulva/perineum Partial removal of vulva Complete removal of vulva Extensive vulva surgery Extensive vulva surgery Extensive vulva surgery Extensive vulva surgery Extensive vulva surgery Extensive vulva surgery Extensive vulva surgery Partial removal of hymen Repair clitoris Repair of perineum Examination of vulva w/scope Examination/biopsy of vulva w/scope Exploration of vagina Drainage of pelvic abscess Drainage of pelvic fluid I and d vaginal hematoma pp I and d vaginal hematoma non-ob Destroy vaginal lesions simple Destroy vaginal lesions complex Biopsy of vagina Biopsy of vagina Remove vagina wall partial Remove vagina tissue part Vaginectomy partial w/nodes Remove vagina wall complete Remove vagina tissue compl Vaginectomy w/nodes compl Closure of vagina Remove vagina lesion Remove vagina lesion Treat vagina infection Insert uteri tandem/ovoids Ins vaginal brachytx device

84138 84152 84153 84154 84163 84830 85460 85461 88141 88142 88143 88147 88148 88150 88153 88154 88155 88164 88165 88166 88167 88174 88175 88267 88269 89264 89300 89310 89320 89321 89329 89330 89331 99500 99501 A4261 A4264 A4266 A4267 A4268 A4269 A4281 A4282 A4283 A4284 A4285 A4286 A4326 A4327 A4328 C9739 C9740 E0325 E0326 E0602

Female Male Male Male Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Male Female Male Male Male Male Male Male Female Female Female Female Female Male Female Female Female Female Female Female Female Female Male Female Female Male Male Male Female Female

Assay of pregnanetriol Assay of psa complexed Assay of psa total Assay of psa free Pappa serum Ovulation tests Hemoglobin fetal Hemoglobin fetal Cytopath c/v interpret Cytopath c/v thin layer Cytopath c/v thin layer redo Cytopath c/v automated Cytopath c/v auto rescreen Cytopath c/v manual Cytopath c/v redo Cytopath c/v select Cytopath c/v index add-on Cytopath tbs c/v manual Cytopath tbs c/v redo Cytopath tbs c/v auto redo Cytopath tbs c/v select Cytopath c/v auto in fluid Cytopath c/v auto fluid redo Chromosome analysis placenta Chromosome analysis amniotic Identify sperm tissue Semen analysis w/huhner Semen analysis w/count Semen anal vol/count/mot Semen anal sperm detection Sperm evaluation test Evaluation cervical mucus Retrograde ejaculation anal Home visit prenatal Home visit postnatal Cervical cap contraceptive Intratubal occlusion device Diaphragm Male condom Female condom Spermicide Replacement breast pump tube Replacement breast pump adpt Replacement breast pump cap Replacement breast pump shield Replacement breast pump bottle Replacement breastpump lok ring Male external catheter Female urinary collect dev cup Female urinary collect pouch Cystoscopy prostatic imp 1-3 Cysto impl 4 or more Urinal male jug type Urinal female jug type Manual breast pump

57160

Female

Insert pessary/other device

E0603

Female

Electric breast pump (continued)


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Appendix Table 1. (Continued) HCPCS

Valid sex

Code description

HCPCS

Valid sex

57170 57180 57200 57210 57220 57230 57240 57250 57260 57265 57267 57268 57270 57280 57282 57283 57284 57285 57287 57288 57289 57291 57292 57295 57296 57307 57308 57310 57311 57320 57330 57335 57400 57410 57415 57420 57421 57423 57425 57426 57452

Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female

Fitting of diaphragm/cap Treat vaginal bleeding Repair of vagina Repair vagina/perineum Revision of urethra Repair of urethral lesion Repair bladder and vagina Repair rectum and vagina Repair of vagina Extensive repair of vagina Insert mesh/pelvic flr addon Repair of bowel bulge Repair of bowel pouch Suspension of vagina Colpopexy extraperitoneal Colpopexy intraperitoneal Repair paravag defect open Repair paravag defect vaginal Revise/remove sling repair Repair bladder defect Repair bladder and vagina Construction of vagina Construct vagina with graft Revise vaginal graft through vagina Revise vaginal graft open abd Fistula repair and colostomy Fistula repair transperine Repair urethrovaginal lesion Repair urethrovaginal lesion Repair bladder-vagina lesion Repair bladder-vagina lesion Repair vagina Dilation of vagina Pelvic examination Remove vaginal foreign body Examination of vagina w/scope Examination/biopsy of vaginal w/scope Repair paravag defect lap Laparoscopy surg colpopexy Revise prosth vaginal graft lap Examination of cervix w/scope

E0604 G0027 G0101 G0102 G0103 G0123 G0124 G0141 G0143 G0144 G0145 G0147 G0148 G0202 G0416 G0417 G0418 G0419 G0458 G8806 G8807 G8808 G8809 G8810 G8811 P3000 P3001 Q0091 S0610 S0612 S4005 S4011 S4013 S4014 S4015 S4016 S4017 S4018 S4020 S4021 S4022

Female Male Female Male Male Female Female Female Female Female Female Female Female Female Male Male Male Male Male Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female Female

Hosp grade elec breast pump Semen analysis Ca screen; pelvic/breast exam Prostate ca screening; dre Psa screening Screen cerv/vaginal thin layer Screen c/v thin layer by md Scr c/v cyto, autosys and md Scr c/v cyto, thin layer, rescr Scr c/v cyto, thin layer, rescr Scr c/v cyto, thin layer, rescr Scr c/v cyto, automated sys Scr c/v cyto, autosys, rescr Screeningmammographydigital Biopsy prostate 10–20 Biopsy prostate 21–40 Biopsy prostate 41–60 Biopsy prostate: >60 Ldr prostate brachy comp rat Transab or transvag us Doc reas no us No transab or transvag us Rh-immunoglobulin order Doc reas no rh-immuno No rh-immunoglobulin order Screen pap by tech w md supv Screening pap smear by phys Obtaining screen pap smear Annual gynecological examina Annual gynecological examina Interim labor facility globa IVF package Complete GIFT case rate Complete ZIFT case rate Complete IVF nos case rate Frozen IVF case rate IVF canc a stim case rate F EMB trns canc case rate IVF canc a aspir case rate IVF canc p aspir case rate Asst oocyte fert case rate

57454 57455 57456 57460 57461 57500 57505 57510 57511 57513 57520 57522 57530

Female Female Female Female Female Female Female Female Female Female Female Female Female

Bx/curett of cervix w/scope Biopsy of cervix w/scope Endocerv curettage w/scope Bx of cervix w/scope leep Conz of cervix w/scope leep Biopsy of cervix Endocervical curettage Cauterization of cervix Cryocautery of cervix Laser surgery of cervix Conization of cervix Conization of cervix Removal of cervix

S4023 S4025 S4026 S4027 S4028 S4030 S4031 S4035 S4037 S4040 S4989 S4993 S9001

Female Female Male Female Male Male Male Female Female Female Female Female Female

Incomplete donor egg case rate Donor serv IVF case rate Procure donor sperm Store prev frozen embryos Microsurg epi sperm asp Sperm procure init visit Sperm procure subs visit Stimulated IUI case rate Cryo embryo transf case rate Monit store cryo embryo 30 d Contracept IUD Contraceptive pills for bc Home uterine monitor with or

57531 57540

Female Female

Removal of cervix radical Removal of residual cervix

S9436 S9437 S9438 S9439

Female Female Female Female

Lamaze class Childbirth refresher class Cesarean birth class VBAC class

HCPCS, Healthcare Common Procedure Coding System.

Code description


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Appendix Table 2. Sex Hormones

Appendix Table 2. (Continued) Progesterone, Micronized Spironolactone Spironolactone Sprintec Syeda Testim Testosterone Testosterone Cypionate Testosterone Cypionate Testosterone Enanthate Testosterone Enanthate Tri-Linyah TriNessa Tri-Previfem Tri-Sprintec Xolegel Zovia 1-35E

Avodart Briellyn Cenestin Climara CombiPatch Delestrogen Depo-Estradiol Depo-Provera Depo-Testosterone Dutasteride Estrace Estradiol Estradiol Cypionate Estradiol Valerate Estradiol Valerate Estradiol/Norethindrone Acetate Estrogen, Conjugated/M-Progesterone Acetate Estrogens, Conjugated Estrogens, Conjugated, Synthetic A Estrogens, Esterified Estropipate Estropipate Ethinyl Estradiol/Drospirenone Ethynodiol D-Ethinyl Estradiol Finasteride Fluoxymesterone Fortesta Gianvi Gildess Fe Junel Junel Fe Ketoconazole Ketoconazole Leuprolide Acetate Loryna Lupron Depot Medroxyprogesterone Acetate Menest Microgestin Microgestin Fe Mononessa Necon Norelgestromin/Ethinyl Estradiol Norethindrone A-Ethinyl Estradiol/Ferrous Fumarate Norethindrone A–E Estradiol Norethindrone-Ethinyl Estradiol Norethindrone-Mestranol Norgestimate-Ethinyl Estradiol Norgestimate-Ethinyl Estradiol Norgestrel-Ethinyl Estradiol Nortrel Ocella Ogestrel Ortho Evra Ortho Tri-Cyclen Ortho Tri-Cyclen Lo Ortho-Cyclen Philith Premarin Prempro Progesterone Progesterone

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