LGBTQ+ Aging Research Connections Opportunities

September 2022

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Research Title: RISE (Research Inclusion Supports Equity): Building Community and Research Engagement among Sexual and Gender Minority Older Adults at Risk for Alzheimer’s Disease and Related Dementias 

Organization: Emory University,University of Nevada, Las Vegas, and University of Tennessee, Knoxville

Study Purpose: This study aims to increase engagement, recruitment, inclusion, & retention of LGBTQIA+ individuals in clinical aging research using a community based participatory approach, data collection from in person activities, online data collection and a national research registry.

Website to participate in the study: https://www.theriseregistry.org/

Target Population: LGBTQIA+ people 18 and older who:

  • Have memory concerns or a memory loss diagnosis such as Alzheimer's disease or a related dementia
  • Are helping care for someone with memory loss or a memory loss diagnosis

Research incentives/Benefits: 330 participants will be invited to complete pilot data questionnaires and will receive $25 dollars for doing so. 120 participants will be invited to do a focus group and will receive $25 dollars for doing so.

Estimated Time Commitment:

  • Online consent: 5-10 minutes
  • Research Registry: 5-10 minutes
  • Focus Groups: 45-75 minutes
  • Questionnaires: 30-60 minutes

Primary Contact: Whitney Wharton

To participate, email: whartonlab@emory.edu

Recruitment begins: 8/26/2022

Recruitment Ends: 9/30/2024

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Research Title: Equitable Death Care for Sexual, Gender, and Racial Minorities

Organization: University of Cincinnati

Study Purpose: This study aims to 1) identify barriers and to the accessibility of equitable death care for LGBTQIA+ people in the U.S., and 2) develop solutions to bridge the disparity gap so that LGBTQIA+ community members may find safe spaces and options in the death care industry.

Website to participate in the study: N/A

Target Population: The target population is LGBTQIA+ adults 18 and older, including both death-care providers and non-providers.

All the materials are in English: English proficiency is necessary. Participants would need access to a device on which they can use Zoom to participate in the interview.

Research incentives/Benefits: $40 Amazon gift card

Estimated Time Commitment: Approximately 90 minutes total |10-15 minutes to review the educational materials ahead of the interview; 5-10 minutes to review the informed consent document, ask questions, and sign; 60 minutes for the interview.

Primary Contact: Jennifer Wright-Berryman

To participate, email: wrigh2jb@ucmail.uc.edu

Recruitment begins: 09/30/2022

Recruitment Ends: 07/31/2023

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Research Title: The Parkinson's Progression Markers Initiative (PPMI)

Organization: The Michael J Fox Foundation

Study Purpose: This study aims to better understand how Parkinson’s disease (PD) starts and changes over time. The study follows groups of people, including those both with and without Parkinson’s disease. The information from this study could transform how we diagnose, treat, and potentially prevent PD.

Website to participate in the study: https://ppmi.study.myachievement.com/ppmistudy/

Target Population: The study has two parts with different requirements: an online and clinical component.

     To join PPMI's online component, participants must be 18 years of age or older.

     To join PPMI's clinical component --

     Individuals who are at least 60 years must be:

        -First-degree family members (parent, child, sibling) of a person with Parkinson’s OR

        -People who have risk factors for the development of PD (known genetic mutation,  loss of smell, history of physically acting out dreams during sleep, and others)

     Individuals who are at least 30 years old must be:

        -People with Parkinson’s who have been diagnosed within the last two years and are not currently taking standard PD medications OR

        -People without Parkinson’s and no known risk.

Research incentives/Benefits: There is no direct monetary benefit to you or others, however, your participation will help us understand how PD develops and changes over time. You will be compensated for your time and travel if you are eligible for the parts of the study that require it. Any findings from PPMI may aid in the development of new treatments, and potentially, cures.

Estimated Time Commitment: The time commitment ranges depending on whether it is the online or clinical part of the study.

Primary Contact: Maddie Kutler

To participate, email: mkutler@michaeljfox.org

Recruitment begins: 8/17/2022

Recruitment Ends: 12/31/2033

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 Research Title: Parkinson's Research with Inclusion, Diversity, and Equity

Organization: University of Nevada, Las Vegas (UNLV)

Study Purpose: This study is focused on understanding the health and healthcare needs of the LGBTQIA+ population living with Parkinson's and their caregivers. The study consists of a 45min phone survey with people with Parkinson's and a 45min survey for their caregivers. All surveys/interviews will be conducted over the phone.

Website to participate in the study: N/A

Target Population: This is a national study available to the following individuals, 18 years or older living in the United States:

  • LGBTQIA+ participants living with Parkinson's
  • Caregivers of LGBTQIA+ participants living with Parkinson's

Research incentives/Benefits: All participants who complete the survey will receive a $25 Visa gift card.

If selected, twenty-five caregivers of people living with Parkinson’s disease who complete a one-on-one interview will receive an additional $25 Visa gift card.

Estimated Time Commitment: Minimum of ~45-60min for the phone survey; an additional 1 hour for caregivers selected for an interview

Primary Contact: Jason Flatt

To participate, email:  jason.flatt@unlv.edu

 Recruitment begins: 08/01/2022

Recruitment Ends: 01/01/2024

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Research Title: The intersectionality of gender and sexual identities in transgender persons

Organization: Montclair State University

Study Purpose: The aim of this study is to examine the relationship between gender and sexual identities in transgender persons. We are interested how gender fluidity may inform or affect sexual attraction fluidity.

Website to participate in the study: N/A

Target Population: Anyone who identifies as gender non-confirming

Research incentives/Benefits: There are no monetary incentives offered for this study. Your participation may better inform mental health professionals on how to help trans persons and contribute to social change by informing community understanding of transgender issues.

Estimated Time Commitment: 10 minutes

Primary Contact: William Baker

To participate, email: bakerw@montclair.edu

Recruitment begins: 12/01/2022

Recruitment Ends: 11/01/2022

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Research Title: Mapping Bi Lives

Organization: University of Kansas School of Social Welfare

Study Purpose: The purpose of this study is to better understand the diverse life trajectories of bisexual individual's lives across diverse gender identities.

Website to participate in the study: N/A

Target Population: Adults age 50 and older who speak English, identify as bisexual and reside anywhere in the U.S.

Research incentives/Benefits: Participants will receive a $30 gift card by mail following their interview.

Estimated Time Commitment: 60-90 minutes

Primary Contact: Sarah Jen

To participate, email: srjen@ku.edu

Recruitment begins: 5/22/2022

Recruitment Ends: 10/31/2022

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Research Title: Views and Experiences of LGBTQIA+ Older Adults on Aging Review

Organization: Minnesota State University, Mankato

Study Purpose: The purpose of this study is to gather stories from members of the LGBTQ older adult population in order to understand how nurses can provide appropriate and high quality care.

Website to participate in the study: N/A

Target Population: Members of the LGBTQ community over the age of 55, living in the US.

Research incentives/Benefits: There are no monetary incentives for participation in this study.

Estimated Time Commitment: Approximately 1 hour

Primary Contact: Tammy Neiman

To participate, email: tammy.neiman@mnsu.edu

Recruitment begins: 5/31/2022

Recruitment Ends:

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Research Title: A systemic approach to addressing Cancer Disparities for LGBTQI+ Survivors: An Application of the Multicultural Orientation to Increase Affirmative Care

Organization: University of Denver

Study Purpose: This aim of the current project is to collect data that measures the strength of association between cancer providers’ cultural humility, cultural opportunities, and LGBTQI+ cancer patients’ perception of provider relationship, engagement in cancer care, and cancer-related distress.

Website to participate in the study: https://udenver.qualtrics.com/jfe/form/SV_bC5xM0QvkvehoEe?Q_CHL=qr

Target Population: Self-identified as LGBTQI+ , above the age of 18, have been diagnosed with cancer in the last 25 years, able to identify the name of an oncology provider with whom you have had an appointment with in the last six months

Research incentives/Benefits: If you decide to participate, you will be asked to complete a 15-minute online survey. Upon completion, you will be eligible to enter a lottery to receive 1 of 50 $50 Amazon gift cards.

Primary Contact: Dr. Trisha Raque

To participate, email: Trisha.Raque@du.edu

Recruitment begins: 04/14/2022

Recruitment Ends: 09/01/2022

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Research Title: Forgotten lives: The experiences of trans older adults with dementia

Organization: University of Ottawa

Study Purpose: The primary purpose of this research is to 1) To develop new knowledge about how the intersections of gender identity, cognitive impairment and age are experienced in everyday life 2) To explore and document the everyday realities of the intersections of oppressions and forms of discrimination that these people experience, and 3) To develop recommendations for practitioners working with these populations as well as for policy makers.

Target Population: Trans and non-binary older adults living with dementia and their caregivers.

Research incentives/Benefits: $25 gift card

Primary Contact: Marjorie Silverman, Ph.D.

To participate, email: trans.dementia.project@gmail.com

Recruitment begins: 04/11/2022

Recruitment Ends: 10/01/2022

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Research Title: Trans Resiliency Project

Organization: Mercy College

Study Purpose: The Transgender Resilience Project is a strengths-based comprehensive study of the experiences of transgender and gender diverse people across the lifespan to improve health and academic success. The project serves as an opportunity for individuals in gender diverse communities to come together to support each other and educate others about their experiences.

*Participants Should Be: People who identify as transgender or gender diverse in the USA and Europe, who are older than 19, and haven’t had a partner in the study could be interviewed in English.

Website to participate in the studyhttps://bit.ly/3Cj9zSa

Research Incentives/Benefits: Participants will receive $75 incentive for participating in the study.

Primary Contact: Sarah Hahn

To participate emailshahn@mercy.edu

Recruitment Begins: 03/01/2022

Recruitment Ends: 06/30/2022

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Research Title: Project Respect: LGBTQ+ Experiences with Healthcare Providers for Serious Illness

Organization: Yeshiva University - Wurzweiler School of Social Work; and Fordham University - Graduate School of Social Service

Study Purpose: Project Respect is recruiting a sample of LGBTQ+ individuals with serious illness, or the spouses/partners or widows of someone with a serious illness, to complete their survey.  We seek to hear about LGBTQ+ patient and partner experiences with healthcare providers while receiving care for a serious illness.  Our goal is to plan training for doctors, nurses, social workers, and clergy that will reduce discrimination and increase respect for the LGBTQ+ community.  The anonymous survey takes approximately 15 minutes to complete.  Please distribute this announcement to individuals, clients/patients, friends, colleagues, networks, or anyone you think would be interested in completing our survey.

Website to participate in the study:  yu.edu/ProjectRespect

Research Incentives/Benefits: Participants won't receive any incentives or direct benefits for completing the survey.  We hope that knowledge gained about LGBTQ+ patient and partner experiences will reduce discrimination and increase respect for the LGBTQ+ community in healthcare settings.

Primary Contact: Gary Stein

To participate email: glstein@yu.edu

Recruitment Begins: 12/1/2021

Recruitment Ends: 7/31/2022

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Research Title: The Dolores & Soledad Project – Chronic Pain and Loneliness in Latinos / Proyecto Dolores y Soledad – Dolor crónico y soledad en latinos

Organization: Weill Cornell Medicine

Study Purpose: Researchers at Weill Cornell Medicine are conducting a research study that aims to understand the experiences of Latinos, 60 years and older living with chronic pain or loneliness.

If you are eligible and agree to take part in the study, you will be asked to complete a questionnaire and interview on the phone or in person that will explore your views and opinions. This information will contribute to enhancing quality of healthcare and effectiveness of current treatment.

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Investigadores de Weill Cornell Medicine están llevando a cabo un estudio de investigación que pretende comprender las experiencias de los latinos de 60 años o más, que viven con dolor crónico o soledad.
Si cumple los requisitos y acepta participar en el estudio, se le pedirá que llene un cuestionario y participe en una entrevista para conocer sus puntos de vista y opiniones. Se espera que esta información contribuya a mejorar la calidad de la atención médica y la eficacia del tratamiento actual.

Research Incentives/Benefits:Eligible participants will be compensated for completing the study with a $50 American Express gift card.

Los participantes elegibles serán compensados por completar el estudio con una tarjeta de regalo con valor de $50 de American Express.

Primary Contact: Dr. David Camacho

To participate: If you are interested in participating or if you would like more information about this project, please contact our project number (646) 801-0602 or email Dr. David Camacho at dac4007@med.cornell.edu.

Si le interesa participar o desea más información sobre este proyecto, llame al (646) 801-0602 o comuníquese por correo electrónico con el Dr. David Camacho a la dirección dac4007@med.cornell.edu.

Recruitment Begins: 2/1/2022

Recruitment Ends: 9/30/2023

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Research Title: Efficacy of the WeCareAdvisor: An Online Tool to Help Caregivers Manage Behavioral and Psychological Symptoms in Persons with Dementia

Organization: Drexel University College of Nursing & Health Professions

Study Purpose: The study's purpose is to assess an easy-to-use web-based tool to help caregivers of people living with dementias. Caregivers will be assigned to immediate treatment or 3-month waitlist control groups. Our specific objectives are to test: 1) Short-term (1-month) and 2) Longer-term efficacy (3-months) of WeCareAdvisor on caregiver distress, confidence managing BPSD, or BPSD frequency and severity; 3) whether the waitlist control group demonstrates similar benefits after using the tool over a 3-month exposure; and 4) Tool utilization and outcomes using different reminders. Caregivers are enrolled for 6 months.

Study Website: wecareadvisorstudy.com

Primary Contact: Laura Gitlin

For More Information: lng45@drexel.edu

Recruitment Begins: October 2021

 

 

 

*SAGE and the National Resource Center on LGBT Aging have reviewed the research opportunities listed here to ensure the research has been approved by the sponsoring organization’s Institutional Review Board (IRB), aligns with the mission of SAGE, and promotes the core values of diversity, equity and inclusion. Inclusion of the research opportunities does not imply endorsement or by SAGE and the National Resource Center on LGBT Aging.