LGBTQ+ Aging Research Connections Opportunities

January 2023

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Research Title: The SuperAgers Family Study

Organization: Albert Einstein College of Medicine

Study Purpose:  The SuperAgers Family Study aims to identify the inherited and natural factors that protect against human aging and related diseases. Our purpose is centered on uncovering ways to improve aging and protect against age-related diseases in humans. The data from this study will be used to create a large biorepository for future researchers about healthy aging.

Website to participate in the study: https://www.superagersstudy.org/

Target Population: Individuals aged 95 or older and their children.

Research incentives/Benefits: There is no compensation associated with participation in the SuperAgers Family Study.

Estimated Time Commitment: about 1 – 3 hours

Primary Contact: Aoife Mcgovern Leahy

To participate, email: superagers@einsteinmed.edu

Recruitment begins: 12/01/2022

Recruitment Ends: 11/21/2023

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Research Title: Health Care Experiences of Lesbians and Bisexual/Queer Women

Organization: Virginia Tech University

Study Purpose: The purpose of the proposed research activity is to examine health care experiences among older sexual minority women (SMW) with chronic health conditions and/or disabilities. Specifically, the study objectives are to: 1) identify current levels of health care access and barriers among older SMW with disabilities, 2) explore predictors of health care access among older SMW with disabilities, and 3) identify protective factors, such as social support and resilience, that moderate the relationship between health care access barriers and health outcomes.

Target Population: 

a. Self-identify as a lesbian, bisexual woman, or non-heterosexual woman **Transgender women and non-binary people who identify as lesbians are included in this sample**

b. Are aged 55 or older

c. Self-identify as having a disability, chronic illness, or other chronic health problem

d. Currently reside in the United States

Research incentives/Benefits: Participants will be entered in a drawing to receive one of 100 $25.00 Amazon gift cards following completion of the study. Entering the drawing is voluntary and not required.

Estimated Time Commitment: If participants prefer to complete the survey via phone, we expect that scheduling a time to take the survey may take anywhere between 5 and 10 minutes. Completing the survey may take anywhere from 20 to 45 minutes, depending on any questions they have about the research during the phone call.

Primary Contact: Jordan Westcott

To participate, email: jwestcott@vt.edu

Recruitment begins: 7/18/2022

Recruitment Ends: 12/30/2022

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 Research Title: Exploring Nonbinary Individuals’ Experiences with Incarceration

Organization: Lehigh University

Study Purpose: Some older adults may have had previous experience in the carceral system, and their experiences as it relates to their gendered identity in a very gendered environment are of interest. The findings of this qualitative study may inform policymakers and other researchers on changes needed for nonbinary and gender non-conforming individuals who are incarcerated throughout their developmental lifetime. 

Target Population: Adults at least 18 years old identifying as gender diverse (nonbinary, genderqueer, agender, two-spirit—this is not an exhaustive list) and have been previously incarcerated in jail and/or prison within the United States.

Research incentives/Benefits: Participants will receive a $50.00 visa gift card upon completion of the interview.

Estimated Time Commitment: 45-60 minute virtual interview

Website to participate in the study: https://wordpress.lehigh.edu/theresistance/

Primary Contact: Madison Tschauner

To participate, email: met220@lehigh.edu

Recruitment begins: 10/13/2022

Recruitment Ends: 10/13/2023

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Research Title: Aging with Pride 2022

Organization: University of Washington Goldsen Institute

Study Purpose:  This longitudinal study assesses risk and protective factors related to health and quality of life (QOL) among lesbian, gay, bisexual, and transgender (LGBT) midlife and older adults.

Target Population: Lesbian, gay, bisexual, and transgender women and men aged 45 or older at the time of recruitment

Languages: This study is open to participants who need study materials in Spanish

Research incentives/Benefits: Participants who complete a short screening survey are eligible for a drawing awarding $150 Gift Certificates to 12 randomly selected individuals. Once enrolled in the longitudinal study, participants will receive $20 cash for each longitudinal survey they complete. (Longitudinal data collection takes place every other year.)

Primary Contact: Karen Fredriksen Goldsen

To participate, email: fredrikk@uw.edu

Recruitment begins: 11/14/2022

Recruitment Ends: 11/30/2023

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Research Title: Same-Gender Loving Black Men's Mental Health during COVID-19

Organization: The New School for Social Research

Study Purpose: This study will involve a virtual interview with Black cis-Gay Men in NYC, assessing their experience of 1) connection with Black and LGBTQ communities, 2) mental health stigma, 3) barriers to care, 4) relationships, 5) racism and homophobia, 6) trauma, and 7) coping during COVID-19. The data will be analyzed using discourse analysis, and include activists creating art from the analysis. The collaboration will result in scholarly articles and presentations, alongside performance art to generate consciousness raising in the community.

Target Population: Self-identified Black (including African-American, Afro-Caribbean, Afro-Latinx, and African immigrant communities) men who were assigned male at birth, self-identifying as Gay or Same Gender loving, between the ages of 18-61, and residing and presently located in New York State.

Research incentives/Benefits: $40 gift card

Estimated Time Commitment: 1-1.5 hours

Website to participate in the study: https://drgpsychotherapy.com/black-gay-men-coping-mental-health-nyc-study

Primary Contact: Daniel Gaztambide

To participate, email: gaztambd@newschool.edu

Recruitment begins: 11/9/2022

Recruitment Ends: 5/21/2023

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Research Title: Perspectives on healthcare access and equity of people with Parkinson's disease identifying as lesbian, gay, bisexual, transgender, questioning, intersex, or two-spirit

Organization: Creighton University

Study Purpose: The purpose of this study is to understand the lived experiences of LGBTQ+ older adults living with Parkinson's Disease (PD) regarding access to and delivery of healthcare and research participation. We aim to 1) gather perspectives of LGBTQ+ individuals with PD, their care partners, and their physicians through individual interviews and focus groups; and to 2) evaluate the inclusivity and LGBTQ+ cultural responsiveness of institutional policies and procedures for patient care and documentation systems of local healthcare centers and clinics. Our goal is to influence healthcare policies and practices, and access and delivery to LGBTQ+ elders with PD.

Target Population: 

-LGBTQ+ identified individuals either A)living with Parkinson's Disease or B) caring for someone with Parkinson's Disease

-Physicians providing care for individuals with Parkinson's Disease

Research incentives/Benefits: There is no monetary compensation for participation in this study. 

Primary Contact: Tara McIsaac

To participate, email: taramcisaac@creighton.edu

Recruitment begins: 10/25/2022

Recruitment Ends: 12/31/2023

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Research Title: Exploring the Interaction of Race and Sexual Identity on Advance Care Planning in Older Gay and Lesbian Adults

Organization: University of Southern California

Study Purpose: The purpose of this study is to understand older sexual minority adults' knowledge and actions around discussions with others about future healthcare wishes and healthcare experiences. 

Target Population: Adults 50 years of age or older identifying as lesbian or gay

Research incentives/Benefits: $10 Amazon gift card

Estimated Time Commitment: 10-15 minutes

Primary Contact: Meki Singleton

To participate, email: mekiayls@usc.edu

Recruitment begins: 10/25/202

Recruitment Ends: 09/30/2023

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 Research Title: RISE (Research Inclusion Supports Equity): Building Community and Research Engagement among Sexual and Gender Minority Older Adults at Risk for Alzheimer’s Disease and Related Dementias 

Organization: Emory University,University of Nevada, Las Vegas, and University of Tennessee, Knoxville

Study Purpose: This study aims to increase engagement, recruitment, inclusion, & retention of LGBTQIA+ individuals in clinical aging research using a community based participatory approach, data collection from in person activities, online data collection and a national research registry.

Website to participate in the study: https://www.theriseregistry.org/

Target Population: LGBTQIA+ people 18 and older who:

  • Have memory concerns or a memory loss diagnosis such as Alzheimer's disease or a related dementia
  • Are helping care for someone with memory loss or a memory loss diagnosis

Research incentives/Benefits: 330 participants will be invited to complete pilot data questionnaires and will receive $25 dollars for doing so. 120 participants will be invited to do a focus group and will receive $25 dollars for doing so.

Estimated Time Commitment:

  • Online consent: 5-10 minutes
  • Research Registry: 5-10 minutes
  • Focus Groups: 45-75 minutes
  • Questionnaires: 30-60 minutes

Primary Contact: Whitney Wharton

To participate, email: whartonlab@emory.edu

Recruitment begins: 8/26/2022

Recruitment Ends: 9/30/2024

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Research Title: Equitable Death Care for Sexual, Gender, and Racial Minorities

Organization: University of Cincinnati

Study Purpose: This study aims to 1) identify barriers and to the accessibility of equitable death care for LGBTQIA+ people in the U.S., and 2) develop solutions to bridge the disparity gap so that LGBTQIA+ community members may find safe spaces and options in the death care industry.

Website to participate in the study: N/A

Target Population: The target population is LGBTQIA+ adults 18 and older, including both death-care providers and non-providers.

All the materials are in English: English proficiency is necessary. Participants would need access to a device on which they can use Zoom to participate in the interview.

Research incentives/Benefits: $40 Amazon gift card

Estimated Time Commitment: Approximately 90 minutes total |10-15 minutes to review the educational materials ahead of the interview; 5-10 minutes to review the informed consent document, ask questions, and sign; 60 minutes for the interview.

Primary Contact: Jennifer Wright-Berryman

To participate, email: wrigh2jb@ucmail.uc.edu

Recruitment begins: 09/30/2022

Recruitment Ends: 07/31/2023

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Research Title: The Parkinson's Progression Markers Initiative (PPMI)

Organization: The Michael J Fox Foundation

Study Purpose: This study aims to better understand how Parkinson’s disease (PD) starts and changes over time. The study follows groups of people, including those both with and without Parkinson’s disease. The information from this study could transform how we diagnose, treat, and potentially prevent PD.

Website to participate in the study: https://ppmi.study.myachievement.com/ppmistudy/

Target Population: The study has two parts with different requirements: an online and clinical component.

     To join PPMI's online component, participants must be 18 years of age or older.

     To join PPMI's clinical component --

     Individuals who are at least 60 years must be:

        -First-degree family members (parent, child, sibling) of a person with Parkinson’s OR

        -People who have risk factors for the development of PD (known genetic mutation,  loss of smell, history of physically acting out dreams during sleep, and others)

     Individuals who are at least 30 years old must be:

        -People with Parkinson’s who have been diagnosed within the last two years and are not currently taking standard PD medications OR

        -People without Parkinson’s and no known risk.

Research incentives/Benefits: There is no direct monetary benefit to you or others, however, your participation will help us understand how PD develops and changes over time. You will be compensated for your time and travel if you are eligible for the parts of the study that require it. Any findings from PPMI may aid in the development of new treatments, and potentially, cures.

Estimated Time Commitment: The time commitment ranges depending on whether it is the online or clinical part of the study.

Primary Contact: Maddie Kutler

To participate, email: mkutler@michaeljfox.org

Recruitment begins: 8/17/2022

Recruitment Ends: 12/31/2033

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 Research Title: Parkinson's Research with Inclusion, Diversity, and Equity

Organization: University of Nevada, Las Vegas (UNLV)

Study Purpose: This study is focused on understanding the health and healthcare needs of the LGBTQIA+ population living with Parkinson's and their caregivers. The study consists of a 45min phone survey with people with Parkinson's and a 45min survey for their caregivers. All surveys/interviews will be conducted over the phone.

Website to participate in the study: N/A

Target Population: This is a national study available to the following individuals, 18 years or older living in the United States:

  • LGBTQIA+ participants living with Parkinson's
  • Caregivers of LGBTQIA+ participants living with Parkinson's

Research incentives/Benefits: All participants who complete the survey will receive a $25 Visa gift card.

If selected, twenty-five caregivers of people living with Parkinson’s disease who complete a one-on-one interview will receive an additional $25 Visa gift card.

Estimated Time Commitment: Minimum of ~45-60min for the phone survey; an additional 1 hour for caregivers selected for an interview

Primary Contact: Jason Flatt

To participate, email:  jason.flatt@unlv.edu

 Recruitment begins: 08/01/2022

Recruitment Ends: 01/01/2024

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Research Title: The intersectionality of gender and sexual identities in transgender persons

Organization: Montclair State University

Study Purpose: The aim of this study is to examine the relationship between gender and sexual identities in transgender persons. We are interested how gender fluidity may inform or affect sexual attraction fluidity.

Website to participate in the study: N/A

Target Population: Anyone who identifies as gender non-confirming

Research incentives/Benefits: There are no monetary incentives offered for this study. Your participation may better inform mental health professionals on how to help trans persons and contribute to social change by informing community of understanding of transgender issues.

Estimated Time Commitment: 10 minutes

Primary Contact: William Baker

To participate, email: bakerw@montclair.edu

Recruitment begins: 12/01/2022

Recruitment Ends: 11/01/2022

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Research Title: Mapping Bi Lives

Organization: University of Kansas School of Social Welfare

Study Purpose: The purpose of this study is to better understand the diverse life trajectories of bisexual individual's lives across diverse gender identities.

Website to participate in the study: N/A

Target Population: Adults age 50 and older who speak English, identify as bisexual and reside anywhere in the U.S.

Research incentives/Benefits: Participants will receive a $30 gift card by mail following their interview.

Estimated Time Commitment: 60-90 minutes

Primary Contact: Sarah Jen

To participate, email: srjen@ku.edu

Recruitment begins: 5/22/2022

Recruitment Ends: 10/31/2022

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Research Title: Protected and Served?

Organization: Lambda Legal and Black and Pink National

Study Purpose: The survey includes questions specific to the experiences that people might have had with the criminal legal system, and questions about our communities trust in these institutions. The survey also includes specific questions about the experience of sex workers. We know that LGBTQ+ people and people living with HIV experience high rates of discrimination and bias in the criminal legal system, especially when they hold multiple marginalized identities, yet there is very little research on this topic. This survey will inform and support new research, advocacy, litigation, and policy efforts.

Target Population: (Adults)LGBTQ+ people and people living with HIV

Research incentives/Benefits: All participants who complete the survey will be entered into a raffle to win $100.

Estimated Time Commitment: 10 minutes

Primary Contact: Sharon Mcgowan

To participate, email: smcgowan@lambdalegal.org

Recruitment begins: 7/18/2022

Recruitment Ends: 12/30/2022

 

 

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Research Title: The Dolores & Soledad Project – Chronic Pain and Loneliness in Latinos / Proyecto Dolores y Soledad – Dolor crónico y soledad en latinos

Organization: Weill Cornell Medicine

Study Purpose: Researchers at Weill Cornell Medicine are conducting a research study that aims to understand the experiences of Latinos, 60 years and older living with chronic pain or loneliness.

If you are eligible and agree to take part in the study, you will be asked to complete a questionnaire and interview on the phone or in person that will explore your views and opinions. This information will contribute to enhancing quality of healthcare and effectiveness of current treatment.

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Investigadores de Weill Cornell Medicine están llevando a cabo un estudio de investigación que pretende comprender las experiencias de los latinos de 60 años o más, que viven con dolor crónico o soledad.
Si cumple los requisitos y acepta participar en el estudio, se le pedirá que llene un cuestionario y participe en una entrevista para conocer sus puntos de vista y opiniones. Se espera que esta información contribuya a mejorar la calidad de la atención médica y la eficacia del tratamiento actual.

Research Incentives/Benefits:Eligible participants will be compensated for completing the study with a $50 American Express gift card.

Los participantes elegibles serán compensados por completar el estudio con una tarjeta de regalo con valor de $50 de American Express.

Primary Contact: Dr. David Camacho

To participate: If you are interested in participating or if you would like more information about this project, please contact our project number (646) 801-0602 or email Dr. David Camacho at dac4007@med.cornell.edu.

Si le interesa participar o desea más información sobre este proyecto, llame al (646) 801-0602 o comuníquese por correo electrónico con el Dr. David Camacho a la dirección dac4007@med.cornell.edu.

Recruitment Begins: 2/1/2022

Recruitment Ends: 9/30/2023

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Research Title: Efficacy of the WeCareAdvisor: An Online Tool to Help Caregivers Manage Behavioral and Psychological Symptoms in Persons with Dementia

Organization: Drexel University College of Nursing & Health Professions

Study Purpose: The study's purpose is to assess an easy-to-use web-based tool to help caregivers of people living with dementias. Caregivers will be assigned to immediate treatment or 3-month waitlist control groups. Our specific objectives are to test: 1) Short-term (1-month) and 2) Longer-term efficacy (3-months) of WeCareAdvisor on caregiver distress, confidence managing BPSD, or BPSD frequency and severity; 3) whether the waitlist control group demonstrates similar benefits after using the tool over a 3-month exposure; and 4) Tool utilization and outcomes using different reminders. Caregivers are enrolled for 6 months.

Study Website: wecareadvisorstudy.com

Primary Contact: Laura Gitlin

For More Information: lng45@drexel.edu

Recruitment Begins: October 2021

 

 

 

*SAGE and the National Resource Center on LGBT Aging have reviewed the research opportunities listed here to ensure the research has been approved by the sponsoring organization’s Institutional Review Board (IRB), aligns with the mission of SAGE, and promotes the core values of diversity, equity and inclusion. Inclusion of the research opportunities does not imply endorsement or by SAGE and the National Resource Center on LGBT Aging.